A - J
Ethics and Decision-Making Subgroup Bibliography A- J
Bookmarks: A B C D E F G H I J
Abbott, K.M. 1996 Minors and Consent to Treatment: A Policy Proposal for the Health Care Provider. Journal of Nursing Law, 3 (2):42-55.
Able-Boone, H., Dokecki, P., and Smith, M. 1989 Parent and Health Care Provider Communication and Decision-Making in the Intensive Care Nursery. Children’s Health Care, 18: 133-141.
Abramovitz, L; Senner, A. 1995 Pediatric Bone Marrow Transplantation Update. Oncology Nursing Forum, 22(1).
Abrams, A; Rauch, Paula 1998 Developmental Considerations in Critical Care Medicine. New Horizons, 6(4): 321-397.
Ackerman, T. 1981 Moral Duties of Investigators Toward Sick Children. Institutional Review Board, 3 (6): 1-5.
Albin, Arthur 1993 Supportive Care of Children with Cancer. Baltimore: Johns Hopkins University Press
Adelman, H.S., Kaiser-Boyd, N. and Taylor, L. 1984 Children’s Participation in Consent for Psychotherapy and Their Subsequent Response to Treatment. Journal of Clinical Child Psychology, 13: 170-178.
Alderson, Priscilla 1990 Choosing for Children: Parents Consent to Surgery. London: Oxford University Press. 1990 Consent to Children’s Surgery and Intensive Medical Treatment. Journal of Law and Society, 17 (1):52-65. 1991 Children’s Consent to Surgery, Pediatric Nursing, 3 (10):10-13. 1992 British Pediatric Association Guidelines for the Ethical Conduct of Medical Research Involving Children. Bulletin of Medical Ethics, 80: 13:20. 1992 Did Children Change, or the Guidelines? The Changing Position of Children in Bioethics Guidelines. Bulletin of Medical Ethics, 80: 21-28. 1992 Everyday and Medical Life Choices: Decision Making Among 8-15 Year Old School Students. Child Care, Health and Development, 18: 81-95. 1992 Guidelines for the Ethical Conduct of Medical Research Involving Children. In Bulletin of Medical Ethics, 80:13-24 London: Professional and Scientific Publications Ltd. 1989-1992. 1992 Consent to Health Treatment and Research: Differing Perspective. (Edited Conference Proceedings.) London: Social Science Research Unit. 1992 In the Genes or in the Stars: Children’s Competence to Consent. Journal of Medical Ethics, 18: 119-24. 1993 Children’s Consent to Surgery. Bristol, PA: Open University Press 1994 Respect for Children’s Autonomy in Decisions About Their Health Care. Paper for the Institute for Public Policy Research. Social Service Research Unit, Institute of Education, University of London.
Alderson, P and Goodwin, M. 1993 Contradictions Within Concepts of Children’s Competence. The International Journal of Children’s Rights, 1: 303-313.
Alderson, Priscilla, and Mayall, Berry (eds.) 1994 Children’s Decisions in Health Care and Research. Report of the SSR Consent Conference Series. No.5. Social Science Research Unit Institute of Education, University of London.
Alderson, P., and Montgomery, J. 1996 Health Care Choices: Making Decisions with Children. London: Institute for Public Policy Research.
Alderson, P. and Pfeiffer, N. 1991 Social Science as Handmaiden or a Partner to Bioethics. Report Commissioned for Discussion at the First Meeting of the Nuffield Council on Bioethics.
Allen, Charlotte 1997 Spies Like Us. Lingua Franca, 31-9. American Academy of Pediatrics Committee on Youth 1973 A Model for the Consent of Minors to Health Services. Pediatrics, 51 (x):293-96. American Academy of Pediatrics Committee on Pediatric Emergency Medicine 1993 Consent for Medical Services for Children and Adolescents (RE9309). Pediatrics, 92 (2):290-291. American Academy of Pediatrics Committee on Bioethics 1993 Guidelines on Forgoing Life-Sustaining Treatment (RE9406). Pediatrics, 93 (x):532-536. American Academy of Pediatrics Committee on Drugs 1995 Guidelines for Ethical Conduct of Studies to Evaluate Drugs in Pediatric Populations (RE9503). Pediatrics, 95 (2):286-294 American Academy of Pediatrics Committee on Bioethics 1995 Informed Consent, Parental Permission and Assent in Pediatric Practice (RE9510). Pediatrics, 95 (2):314-317. American Academy of Pediatrics Committee on Fetus and Newborn 1995 Guidelines for Home Care of Infants, Children and Adolescents with Chronic Disease (RE9530). Pediatrics, 96 (1):161-4. American Academy of Pediatrics Committee on Fetus and Newborn. 1995 The Initiation or Withdrawal of Treatment for High Risk Newborns (RE9532). Pediatrics, 96 (2) (Part 1):362-3. American Academy of Pediatrics Committee on Bioethics 1996 Ethics and the Care of Critically Ill Infants and Children (RE9624). Pediatrics, 98 (1):149-152. American Academy of Pediatrics Committee on Bioethics 1997 Religious Objections to Medical Care (RE9707). Pediatrics, 99 (2):279-81. American Academy of Pediatrics 1995 Informed Consent, Parental Permission, and Assent in Pediatric Practice. Pediatrics, 95(2): 314-317. American Academy of Pediatrics Committee on Children with Disabilities 1997 General Principles in the Care of Children and Adolescents with Genetic Disorders and Other Chronic Health Conditions (RE9717). Pediatrics, 99 (4):643-44.
Anderson, B., and Hall, B. 1995 Parent’s Perceptions of Decision Making for Children. Journal of Law, Medical Ethics, 23:15-1995.
Andrykowski, M; Brady, M 1994 Returning To Normal: Following Bone Marrow Transplantation, Outcomes, Expectations, And Informed Consent. Bone Marrow Transplantation, 15: 573-581.
Angst, Denise 1997 Involving Children in their Medical Care. Paper presented at Focus ‘97 - 11th Annual National Pediatrics Conference. Wisconsin. 1997 Partnering with Parents of Children with Chronic Conditions: Dynamic Relationship. Paper Presented at 7th Bi-Annual Conference: Continued Care of Children with Special Needs. Oak Brook, Illinois.
Angst, Denise B. and Deatrick, Janet A. 1996 Involvement in Health Care Decisions: Parents and Children with Chronic Illness. Journal of Family Nursing, 2 (2):174-194.
Anonymous 1988 Ethical Dilemmas. Oncology Nursing Forum, 15 (4):497-9, July-August.
Anonymous 1993 American Academy of Pediatrics Committee on Pediatric Emergency Medicine: Consent for Medical Services For Children And Adolescents. Pediatrics, 92(2):290-291.
Anonymous 1991 Children as Research Subjects Will Continue to Require Special Protection. Human Research Report, 6(11) ISSN 0885-0615.
APM 1998 Psychiatric Aspects of Excellent End-of-Life Care: A position statement of the Academy of Psychosomatic Medicine. Journal of Palliative Medicine, Vol. 1 (2): 113-115
Armstrong, J; Bennett 1995 GOS Booklet for Parent. Great Ormond St. Hospital for Children NHS Trust.
Aronsson, K. and Rundström, B xxxx Child Discourse and Parental Control in Pediatric Consultations. Text, 8 (x):59-189. 1989 Cats, Dogs and Sweets in the Clinical Negotiation of Reality: On Politeness and Coherence in Pediatric Discourse. Language and Society, 18:483-504.
Asai, Atsushi; Fukuhara, Shunichi; Inoshita, Osamu; Miura, Yasukhiko 1997 Medical Decision Concerning The End of Life: A Discussion with Japanese Physicians. Journal of Medical Ethics, 23 (5):323-327.
Ashwal, S., Perkin, RM., and Orr, R. 1992 When Too Much is Not Enough. Pediatric Annals, 21:311-314, 316-317.
Association for Children with Life Threatening or Terminal Conditions and Their Families and the Royal College of Paediatrics and Child Health. 1997 A Guide to the Development of Children’s Palliative Care Services.
Atkins, D.; Patenaude, A. 1987 Psychosocial Preparations and Follow-up for Pediatric Bone Marrow Transplant Patients. American Journal of Orthopsychiatry, Vol. 57:246-252.
Attig, Thomas 1996 Beyond Pain: The Existential Suffering of Children. Journal of Palliative Care, 12 (3):20-23.
Bain, Lisa 1995 A Parents Guide to Childhood Cancer. New York: Dell.
Bainham, A. 1986 The Balance of Power in Family Decisions. Cambridge Law Journal, 45 (2):262-284.
Barakat, LP; Sills, R; and La Bagnara, S. 1995 Management of Fatal Illness and Death in Children or Their Parents. Pediatrics in Review, 16 (11):419-23.
Baron, C.H., Botsford, M., and Cole, G.F. 1975 Live Organ and Tissue Transplants From Minor Donors in Massachusetts. Boston University Law Review, 55:159-153.
Baron, J; Granato, L. 1993 Decision Making Biases In Children And Early Adolescents. Merill Palmer Quarterly, 39: 22- 46.
Bartholome, W.G. 1982 The Ethical Rights of the Child Patient. Frontiers of Radiation Therapy and Oncology, 16 (x):156-166. 1983 Care of the Dying Child: The Demands of Ethics. Second Opinion, 18 (4):25-29. 1989 A New Understanding of Consent in Pediatric Practice: Consent, Parental Permission and Child Assent. Pediatrics Annals, 18 (4):262-5. 1997 The ’Core of Pediatric Ethics: The Ethical Duty to Solicit the Assent of the Child.’ Paper presented at Lutheran General Hospital, Illinois.
Bauchner H. and Klein J. 1997 Parental Issues in Selection of Antimicrobial Agents for Infants and Children. Clinical Pediatrics, 36 (4):201-5.
Beauchamp, Tom L., and McCullogh, Lawrence B. 1984 Medical Ethics: The Moral Responsibilities of Physicians. New Jersey: Prentice-Hall.
Beauchamp, T.L., and Childress, J.F. 1994 Principles of Biomedical Ethics. New York: Oxford University Press.
Becker, Ernest 1973 A New Understanding of Consent in Pediatric Practice. Pediatric Annals, 18:262-65.
Bell, C.J. 1986 Children as Organ Donors: Legal Rights and Ethical Issues. Health and Social Work. 11 (4):291-300.
Berglund, C.A. 1995 Children in Medical Research: Australian Ethical Standard. Child: Care, Health and Development, 21 (2):149-59.
Berman, S. and Villarreal, S. 1983 Use of a Seminar as an Aid in Helping Interns Care For Dying Children and Their Families. Clinical Pediatrics, 22 (3):1175-9.
Bernheimer, L.P. 1986 The Use of Qualitative Methodology in Child Health Research. Children’s Health Care, 14 (4):224-32.
Bersoff, Donald N. 1982 Children as Research Subjects: Problems of Competency and Consent. In The Rights of Children: Legal and Psychological Perspectives. Edited by James Henning. Springfield, Ill.
Biley, F. 1992 Some determinants that effect patients participation in decision-making about nursing care. Journal of Advanced Nursing, 17: 414-421.
Billick, S.B. Developmental Competency. Bulletin of the American Academy of Psychiatry and the Law, 14 (4):301-9.
Billings, Andrew, M.D. 1998 The Hospice Medicare Benefit: An appraisal at 15 years - Introduction to series. Journal of Palliative Medicine, 1(2): 123-125.
Bishop, Agnes Joyce 1978 Participation of Life-threatened Children and Their Parents in Therapeutic Decision Making. Essence 2 (2): 35-46
Bissett-Johnson, Alastair; Ferguson, P 1996 International Commentaries: Consent to Medical Treatment by Older Children in English and Scottish Law. Journal of Contemporary Health Law and Policy, 12(449).
Blanchard, C.G.; Ruckdeschel, J.C.; Blanchard, E; Arena, J.G; Saunders, NL; Malloy, E.D. 1983 Interactions Between Oncologist and Patients During Rounds. Annals of Internal Medicine, 99 (5):694-699.
Blanchard, CG. 1988 Information and decision-making preferences of hospitalized adult cancer patients. Social Science Medicine, 27: 1139-1145.
Bloor, M. 1978 On the Analysis of Observational Data: A Discussion Of The Worth And Uses Of Inductive Techniques And Respondent Validation. Sociology, 12: 546-552.
Blount, R.; Corbin, S.; Sturges, J.; Wolfe, V.; Prater, J.; James, L. 1989 The Relationship Between Adults’ Behavior and Child Coping and Distress During BMA/LP Procedures: A Sequential Analysis. Behavior Therapy, Vol. 20: 585-601.
Blount, R.; Sturges, J.; Powers, S. 1990 Analysis of Child and Adult Behavioral Variations by Phase of Medical Procedure. Behavior
Therapy, Vol. 21:33-48. Boisaubin, Eugene V. 1983 Legal Decisions Affecting The Limitations for Nutritional Support. Hospice Journal. 9, 2-3:131-147
Bosk, Charles 1992 All God’s Mistakes: Genetic Counseling in a Pediatric Hospital. Chicago: University of Chicago Press.
Botkin, Jeffrey; et al A Model Protocol for Evaluating the Behavioral and Psychosocial Effects of BRCA Testing. Journal of the National Cancer Institute, 88 (13): 872-881
Bouffet, E.; Zucchinellin, V.; and Costanzo, P. 1997 Schooling as a Part of Palliative Care in Paediatric Oncology. Palliative Medicine, 11:133-9
Bower, Hilary 1997 MMR Vaccine Policy is Backed. BMJ, 316: 955
Bradley, J.G., Zia, M.J. and Hamilton, N. 1996 Patient Preferences in Control in Medical Decision Making: A Scenario Based Approach. Family Medicine, 28 (7):496-501.
Bradford, R. and Tomlison, L. 1990 Psychological Guidelines in the Management of Pediatric Organ Transplantation. Archives of Disease in Childhood. 65:1000-3.
Brant, J. 1981 Last Rights: An Analysis of Refusal and Withholding of Treatment Cases. Missouri Law Review, 46:337-370 (NB 361-368. The Rights of Children to be Treated When Their Parents Refuse).
Bremmes, R M., Andersen, K and Wist, E.A. 1995 Cancer Patients, Doctors and Nurses Vary in Their Willingness to Undertake Cancer Chemotherapy. European Journal of Cancer, 31A (12):1955-9.
Brenneis, Carleen 1998 The Interaction Between Family Physicians and Palliative Care Consultants in the Delivery of Palliative Care: Clinical and Educational Issues. Journal of Palliative Care, 14(3):58-61.
Brent, N.J. 1991 The Pediatric Patient and Consent for Treatment-Legalities of Home Care. Home Health Care Nurse, 9 (5):10-12.
British Paediatrics Association Ethics Advisory Committee 1992 Guidelines for the Ethical Conduct of Medical Research Involving Children. Reprinted in Bulletin of Medical Ethics.
Brock, Dan W. 1989 Children’s Competence for Health Care Decision Making, In Children and Health Care: Moral and Social Issues. Edited by Kopelman and Moskop. Boston: Kluwer. Academic Publishers. xxxx Ethical Issues in Exposing Children to Risks in Research. In xxxxxx
Broome, M.E. and Stieglitz, K.A. 1992 The Consent Process and Children. Research in Nursing and Health, 15 (2):147-52.
Brown, J.E. 1988 Adolescent Decision Making in the Context of the Family. Unpublished Ph.D. Thesis. The Flinders University of South Australia.
Brown, J.E. and Mann, L 1988 Effects of Family Structure and Parental Involvement on Adolescent Participation in Family Decisions. Australian Journal of Sex, Marriage and the Family, 9:74-85. 1991 Decision-making Competence and Self Esteem: A Comparison of Parents and Adolescents. Journal of Adolescence, 14:363-371.
Brown, P. 1982 Human Independence and Parental Proxy Consent. In Who Speaks for the Child: The Problems of Proxy Consent. Edited by W. Gaylin and R. Macklin. New York: Plenum Press. 209-222.
Buchanan, AE 1989 Deciding For Others - The Ethics Of Surrogate Decision Making. Cambridge University Press: New York, New York
Bush, Andrew Breaking Bad News. Paper presented at xxxxxx
Byrnes, J.; McClenny, B 1994 Decision-making in young adolescents and adults. Journal of Experimental Child Psychology, 58: 359-388.
Cadman, D; Goldsmith, C. 1984 Values, Preferences, And Decisions In The Care Of Children With Developmental Disabilities Journal of Developmental and Behavioral Pediatrics, 5(2): 60-64.
Campbell, B. 1997 Loss and Grief Recovery-Help Caring for Children With Disabilities, Chronic or Terminal Illness-Ashton, J. Ashton, D. Journal of Palliative Care, 13 (2):59-60.
Capello, Carol F.; Meier, Diane; Cassel, Christine Payment Code for Hospital-Based Palliative Care: Help or Hindrance? Journal of Palliative Medicine 1(2): 155-160.
Caplan, Arthur 1997 A Proposal to Create a Program on Children Ethics and Home Care. Unpublished Manuscript. Distributed at Greenwall Seminar, September.
Capron, A.M. 1972 Informed Consent in Catastrophic Disease Research and Treatment. University of Penn Law Review, 123:340. 1973 The Authority of Others to Decide About Biomedical Interventions With Incompetents. In Who Speaks for the Child: The Problems of Proxy Consent. Edited by Gaylin and Macklin, New York: Plenum Press. 115-152. 1992 The Competence of Children as Self-Deciders in Biomedical Interventions. In Who Speaks For the Child: The Problems of Proxy Consent. Edited by Gaylin and Macklin, New York: Plenum Press.
Carney, B. 1987 Bone Marrow Transplantation: Nurses’ and Physicians’ Perceptions of Informed Consent. Cancer Nursing, Vol. 10: 252-259.
Carr-Gregg, M. and White, L. 1987 Siblings of Paediatric Cancer Patients: A Population at Risk. Medical and Pediatric Oncology, 15:62-68.
Carter, Brian S., Sandling, Julie 1992 Decision Making in the NICU: The Question of Medical Futility. The Journal of Clinical Ethics, (2):142-143.
Casarett, Dave; Ross, Lainie Friedman 1997 Iatrogenic Complications: Do Physicians Have a Right to Override a Patients Refusal of Treatment?. New England Journal of Medicine, 336: 1908-1910
Chambers, M xxxx Who Speaks for Children? Journal of Clinical Nursing, 1 (2):73-76.
Charlton, R. 1996 Medical Education-Addressing the Needs of the Dying Child. Palliative Medicine, 10 (3):240-6.
Chavenet, A; Smith, N. 1988 Referral Of Pediatric Oncology Patients For Marrow Transplantation And The Process Of Informed Consent. Medical and Pediatric Oncology, 16: 40-44.
Chesler, M.A., Paris, J. Barbarin O.A. 1986 Telling the Child with Cancer: Parental Choices to Share Information with Ill Children. Journal of Pediatric Psychology, 11 (4):497-515.
Childress, James F. 1989 The Normative Principles of Medical Ethic. In Medial Ethics. Edited by Robert, M. Veatch. Boston: Jones and Bartlett Publishers.
Chodosh, Lewis 1997 My Life as a Dog: Diary of the M.D.-Ph.D Graduate as Intern. The Harvard M.D.-Ph.D Program Newsletter, 3 (2)
1997 My Life as a Rapidly Aging Dog: an M.D-Ph.D has a Conversation with Himself. The Harvard M.D.-Ph.D. Program Newsletter, 8 (1)
Choudhry, Sujit 1994 Review of Legal Instruments and Codes on Medical Experimentation With Children. Cambridge Quarterly of Health Care Ethics, 3:560-572.
Chu, L.; Powers, P. 1995 Synchrony In Adolescence. Adolescence, 30: 453-461.
Clark, F.I. 1994 Intensive Care Treatment Decisions: The Roots of Our Confusion. Pediatricism, 94 (1):98-101.
Cohen, MH 1993 The unknown and the unknowable managing sustained uncertainty. Western Journal of Nursing Research, 15: 77-96.
Cohn, S.D. 1991 The Evolving Law of Adolescent Health Care. NAACOG’s Clinical Issues in Perinatal and Women’s Health, 2 (2):201-8.
Collins, John Joseph 1996 Intractable Pain in Children With Terminal Cancer. Journal of Palliative Care, 12 (3):29-34.
Committee on Bioethics Guidelines on Forgoing Life-sustaining Medical Treatment. Pediatrics, 93: 532-536
Committee on Drugs 1995 Guidelines for the Ethical Conduct of Studies to Evaluate Drugs in Pediatric Populations. Pediatrics, 95(2): 286-294.
Cooper R. and Koch, P.A. 1996 Neonatal and Pediatric Critical Care: Ethical Decision Making. Critical Care Clinics, 12 (1):149-64.
Cooper, Shawn 1984 Minors’ Participation in Therapy Decisions: A Written Therapist-Child Agreement. Journal of Child and Adolescent Psychotherapy, 1 (2):93-96.
Copeland, Donna R.; Silberberg, Yall; and Pfefferbaum, Betty 1983 Attitudes and Practices of Family of Children in Treatment of Cancer: A Cross-Cultural Study. Journal of Pediatric Hematology/Oncology, 5 (1):65.
Corbett, F; Oldham, J; Lilford, P 1995 Offering Patients Entry into Clinical Trials: Preliminary Study of the Views of Perspective Participants. Journal of Medical Ethics, 22: 227-231
Corr, Charles A; Corr, Donna Pediatric Hospice Care. Pediatrics Hospice Care, 76: 774-780
Crigger, Bette-Jane 1996 The Lives of a Bioethics Issue(?) Or Prolegomenon to an Intellectual Ethnography of Bioethics. Paper Presented at AAA Meetings, San Francisco, CA, November.
Cross, A.; Churchill, L. 1982 Ethical and Cultural Dimensions of Informed Consent. Annals of Internal Medicine, Vol. 96: 110-113.
Dangel, Tomasz 1998 Paediatric Palliative Care - A Personal Perspective. European Journal of Palliative Care, 5(3): 86-91.
D’Angio, G.; Davendralingam, S.; Meadows, A.; Evans, A., and Pritchard, J. (eds.) 1992 Practical Pediatric Oncology: The Practice of the Cancer Center, The Children’s Hospital of Philadelphia. Great Britain: Edward Arnold
Damrosch, S; Denicuff, A. 1993 Oncology nurse and physician attitudes toward aggressive cancer treatment. Cancer Nursing, 16(2): 197.
Daugherty, Christopher Hope and the Limits of Research: Commentary. Hastings Center Report, 20-22
Daugherty, C.; Ratain, MV; Grochowski, E.; Stocking, C; and Kodish, E. et al 1995 Perception of Cancer Patients and Their Physcians Involved in Phase I Trials. In Journal of Clinical Oncology, 13:1062-72
David, K.M., Casey, T.H. and Hayward, R. et al 1997 Medulloblastoma: Is the Five Year Survival Rate Improving? Journal of Neurosurgery, 86(1):13-21.
Davies, Betty and Steele, Rose 1996 Challenges in Identifying Children for Palliative Care. Journal of Palliative, 12 (3):5-8.
Davies, J.M. and Reynolds, B.M. 1992 The Ethics of CPR. I Background to Decision Making. Archives of Disease of Childhood, 67 (12):1498-501.
Davis, Adam 1996 Cystic Fibrosis Discussion (father’s daughter diagnosed with Cystic Fibrosis). Personal Communication. via Cystic L- on the Internet, May 2.
Davis, Dena 1997 Genetic Dilemmas and the Child’s Right to an Open Future. Hastings Center Report. 7- 15.
Deatrick, Janet A. 1984 It’s Their Decision Now: Perspectives of Chronically Disabled Adolescents Concerning Surgery. Comprehensive Pediatric Nursing, 7:17-31.
Deatrick, J.A., Wooding, B.C. and Tollefson, L. 1990 Children Should Be Seen and Heard: Chronically Ill Children Should Have a Voice in Treatment Decisions. Health-Progress, 71 (3):76-9.
DeConno, Franco; Boffi, Roberto 1998 Eighteen Years of Home Care: From Assistance by Phone to a Complete Service within the Health Care System. Journal of Palliative Care 14(3): 91-93.
Deeprose, M. 1992 Children’s Consent is a Law Unto Itself. BMA News Review, 19-20.
Department of Health and Human Services Rules and Regulations, Protection of Human Subjects, Subpart D. 1988 Additional Protections for Children Involved as Subjects in Research. 45 Code of Federal Regulations 46 (Rev.1983. 48 Federal Register 46, 9814 (March 8, 1983)).
Dermatis, H. 1990 Psychological Distress In Parents Consenting To Child’s Bone Marrow Transplantation. Bone Marrow Transplantation, 6: 411-417.
DeTrill, M. and Kovalak 1997 The Child With Cancer. Influence of Culture on Truth Telling and Patient Care. Annals of the New York Academy of Sciences, 809:197-210.
Devereux, JA 1993 Can Children Withhold Consent To Treatment. BMJ, 306(6890):1459-1461.
DeVille, K.A. 1996 Internet List Servers and Pediatrics: Newly Emerging Legal and Clinical Practice Issues. Pediatrics, 98 (3):1453-4.
Dickenson, D. 1993 Suffer The Children Act. Nursing Standard, 7 (35):50-2. May.
Dickenson, D 1993 Informed Consent: Suffer the Children Act. Nursing Standard, 7(35): 50-51.
Dorn, L.D; Sussman, E.J. and Fletcher, J.C. 1995 Informed Consent in Children and Adolescents: Age, Maturation and Psychological State. Journal of Adolescent Health, 16 (x):185-190.
Douglas, Gillian 1992 Limiting Gillick. Bulletin of Medical Ethics, 75:34-35.
Doyal, L. and Henning, P. 1994 Stopping Treatment for End-Stage Renal Failure: The Rights of Children and Adolescents. Journal of Pediatric Nephrology, 8:768-9.
Doyal, Len 1998 Informed Consent-A Response to Correspondence. In British Medical Journal, 316: 1000-1001.
Dubler, Nancy and Nimmons, David N. 1992 Ethics on Care. New York: Random House.
Dufour, Diane 1989 Home or Hospital Care for the Child With End Stage Cancer: Effects on One Family. Issues in Comprehensive Pediatrics, 12:371-838.
Dunkel-Schetter, C.; Feinstein, L.; Taylor, S. xxxx Patterns of Coping with Cancer. Health Psychology, Vol. 11: 79-87.
Dworkin, Gerald 1982 Consent, Representation, and Proxy Consent. In Who Speaks for the Child? Edited by Willard Gaylin; Ruth Macklin. Penium Press: New York
Dyer, Clare 1998 Consultant Suspended for Getting Consent for Cardiac Procedure. British Medical Journal, 316: 955-
Eden, OB 1994 Informed Consent- Consent Difficult in Paediatric Oncology. British Medical Journal, 308: 272
Edwardson, S 1983 The Choice Between Hospital And Home Care For Terminally Ill Children. Nursing Research, 32: 30-34.
Eekelaar, J. 1986 The Emergence of Children’s Rights. Oxford Journal of Legal Studies, 6 (2):161-82.
Eiser, C. 1996 Helping the Child with the Chronic Disease: Themes and Directions. Clinical Child Psychology and Psychiatry. 1: 551-561
Eiser, C.; Havermans, T.; Eiser, JR. 1994 What do Children Mean by ‘Quality of Life’? British Psychological Society: Health Promotion Update. 16: 10-13.
Elton, A.; Honig, P.; and Bentovim, A. et al. 1995 Withholding Consent to Life Saving Treatment: 3 Cases. British Medical Journal, 310 (x):373-377.
Engrard, S; Evans, J. 1992 Patients choices and perceptions after an invitation to participate in treatment decision. Social Science and Medicine, 34: 1217-1225.
English, A 1990 Treating Adolescents: Legal and Ethical Considerations. Medical Clinics of North America, 74:1097. 1995 Guidelines for Adolescent Health Research: Legal Perspectives. Journal of Adolescent Health, 17(x):277-286.
English, A., Matthews, M., Palamountain C. et al 1995 State Minor Consent Status: A Summary. San Francisco: National Center for Youth Law.
Engelhardt, H. Tristan 1989 Taking The Family Seriously: Beyond Best Interest. In Children and Health Care. Edited by Kopelman and Moskop. Boston: Kluwer Academics.
Eraker, S; Politser, P. 1981 How Decisions Are Reached: Physician And Patient. Annals of Internal Medicine, 97: 262- 268.
Erickson, S. and Hopkins, M.A. 1987 Gray Areas: Informed Consent in Pediatric and Comatose Adult Patients. Heart and Lung: Journal of Critical Care, 16 (3):323-5.
Erlen, J.A. 1987 The Child’s Choice: An Essential Component in Treatment Decisions. Children’s Health Care, 15 (3):156-60.
Essex, Ben 1994 Doctors, Dilemmas, and Decisions. BMJ Publications: London, pg. 19-21.
Evans, J.L. 1995 Are Children Competent to Make Decisions About Their Own Deaths? Behavioral Science Law, Vol. 13:27-41.
Evans, Martyn 1994 Conflicts of Interest in Research on Children. In Cambridge Quarterly of Health Care Ethics, 3:549-559.
Eve, A. and Smith, Anthony 1996 Survey of Hospice and Palliative Care In Patient Units in the UK and Ireland. 1996 Palliative Medicine, 10 (x):13-21.
Everson-Bates, S. 1988 Research Involving Children: Ethical Concerns and Dilemmas. Journal of Pediatric Health Care, 2:235-239.
Fanos, Joanna H. Sibling Loss. Lawrence Erlbaum Associates, Inc., Publishers: New Jersey.
Feeg, V.D. 1994 Ethics Lessons In A Teenager’s Story. Pediatric Nursing, 20:436.
Ferguson, L.R. 1978 The Competence and Freedom of Children to Make Choices Regarding Participation in Research: A Statement. Journal of Social Issues, 34:101-113.
Fernandez, R. Rivera; Cruz, J.J. Sanchez; Mata, G. Vazquez 1996 Validation of a Quality of Life Questionnaire for Critically Ill Patients. In Intensive Care Medicine, 22:1034-1042.
Ferrell, Betty R.; Borneman, Tami 1998 Integration of Pain Education in Home Care. Journal of Palliative Care 14(3): 62-68.
Filman, Judith 1998 The Dorothy Ley Hospice Day Respite Program. Journal of Palliative Care, 14(3): 94- 97.
Finch, J. 1983 Consent of Minors to Treatment. Nursing Mirror, 157 (6):37-8.
Fine, G.A. 1987 Participant Observation with Children. In With the Boys: Little League Baseball and Pre-Adolescent Culture. Edited by xxxx Chicago: University of Chicago Press
Fine, G.A. and Sanstrom, K. 1989 Knowing Children: Participant Observation with Minors. Sage Publications: Newbury Park, CA.
Finke, L.M.; Birenbaum, L.K.; Chand, N. Two Weeks Post-Death Report by Parents of Siblings’ Grieving Experience. Journal of Child and Adolescent Psychiatric Nursing, 7(4):17-25.
Fins, Joseph; Miller, F.; Acres, C.; Cacchetta, M.; Huzzard, L. 1999 End-of-Life Decision-Making in the Hospital: Current Practice and Future Prospects. Journal of Pain and Symptom Management, 17(1):6-15.
Fisher, Celia 1993 Integrating Science and Ethics in Research With High-Risk Children and Youth. In Social Policy Report, V11(4):1-27. 1998 A Relational Perspective on Ethics-in-Science: Decision Making for Research with Vulnerable Populations. IRB, 19 (5): 1-4
Fleischman, A.R., Nolan, K. and Publan, N.N. et al 1994 Caring for Gravely Ill Children. Pediatrics, 94 (x):433-9.
Fletcher, D. 1992 Unconventional Cancer Treatments: Professional, Legal And Ethical Issues. Oncology Nurse Forum, 19(9): 1351-1354.
Fletcher, JC 1989 Ethical Considerations In Pediatric Oncology. Principles And Practice Of Pediatric Oncology. Pizzo PA, Poplack DGxxxx (eds.) JB Lippincott: Philadelphia.
Fluehr-Lobban, Carolyn 1994 Informed Consent in Anthropological Research: We Are Not Exempt. Human Organization, 53 (1).
Foley, G.V. 1985 Conflicts in Practice . Journal of the Association of Pediatric Oncology Nurses, 2 (3):22-24.
Foley, M.K. 1989 Children with Cancer: Ethical Dilemmas. Seminars in Oncology-Nursing, 5 (2):109-13
Folsom, T.; Popkin, M. 1986 Current and Future Perspectives of Psychiatric Involvement in Bone Marrow Transplantation. Psychiatric Medicine, Vol. 4: 319-329.
Forward. S.P., Brown, Tracy L. and McGrath, Patrick 1996 Mother’s Attitudes and Behavior Toward Medicating Children’s Pain. Pain, 67 (2-3):469-74.
Fost, N. 1986 Parents As Decision-Makers For Children. Biomedical Ethics, 13 (x):285-293.
Fowler, M.D.M. 1988 Pediatric Informed Consent. Heart and Lung, 17 (x):584-85.
Frader, J. 1992 Ethics in Pediatric Intensive Care. In Pediatric Critical Care. Edited by Fuhrman, and J. Zimmerman. St. Louis: Mosey-Year Book, Inc. 1992 The Case: Hoses and Hopes. Second Opinion, 18 (1):83-86.
Frader, Joel E; Bosk, Charles L. 1981 Parent Talk at Intensive Care Unit Rounds. Social Science and Medicine, 15E:267-274.
Frager, Gerri 1996 Pediatric Palliative Care: Building the Model, Bridging the Gaps. Journal of Palliative Care, 12 (3):9-12.
Frank, Arthur 1991 At The Will of The Body. New York: Houghton Mifflin Company
Franklin, Bob 1995 The Handbook of Children’s Rights: Comparative Policy and Practice. London: Rutledge.
Freedman, Benjamin; Fuks, Abraham; and Weijer, Charles In Loco Parentis: Minimal Risk as an Ethical Threshold for Research Upon Children. In Hastings Center Report, 23 (2):13-19.
Frenwen, TC and Moron, G. 1991 Parental Bereavement Following the Unexpected Death of a Child. In Clinical Intensive Care, 2 (4):204-209.
Freund, B.L.; Siegel, K. 1986 Problems in Transition Following Bone Marrow Transplantation. American Journal of Orthopsychiatry, Vol. 52:244-252.
Freyer, D.R. 1992 Children with Cancer: Special Consideration in The Discontinuation of Life Sustaining Treatment. Journal of Medical and Pediatric Oncology, 20:136-42.
Friedland, I.R. 1991 HIV Related Practices and Ethics. South African Medical Journal, 79 (9):529-531.
Friedman, I.A. and Mann, L. 1993 Coping Patterns in Adolescent Decision Making: An Israeli-Australian Comparison. Journal of Adolescence, 16 (2):187-99.
Friedrick, W. 1977 Ameliorating the Psychological Impact of Chronic Physical Disease on the Child and Family. Journal of Pediatric Psychology, 2 (1):26-31.
Gardiner S.D. 1992 Consent in Children. Australian Pediatric Nurse, 14 (1):5-8.
Gardner, G 1977 Psychological Issues In Bone Marrow Transplantation. Pediatrics, 60: 625-631.
Garrs, and Brindis, C. 1995 Choice of Research Setting in Understanding Adolescent Health Problems. Journal of Adolescent Health, 17b (5):xx-xx
Gaylin, W 1979 The Question of Proxy Consent. Journal of the American Academy of Child Psychiatry, 18 (x):419-436. 1982 The Competence of Children: No Longer All or None. Journal of American Academy of Child Psychiatry, 21 (2):153-162 and Hastings Center Report, 12 (2):33-38.
Gaylin, W. and Macklin, R. 1982 Who Speaks for The Child? The Problem of Proxy Consent. New York: Plenum.
Gillon, Raanan 1994 Medical Ethics: Four Principles Plus Attention to Scope. British Medical Journal, 309(x):184-8. 1994 Principles of Health Care Ethics. England: John Wiley and Sons Ltd.
Ginsberg, Kenneth R. et al 1995 ’Adolescent’s Perceptions of Factors Affecting Their Decisions to Seek Health Care.’ JAMA, 273 (x):1913-18.
Glantz, Leonard 1995 Why does Research with Children and Adolescents Raise Difficult Decisions? Ethical and Policy Issues in Research with Children and Adolecents, 1-7 1996 Conducting Research with Children: Legal and Ethical Issues. Journal of American Academy of Child and Adolescent Psychiatry, 34 (10):1283-1291.
Glass, Kathleen Cranely; Speyer-Offenberg, M 1996 Incompetent Persons as Research Subjects and the Ethics of Minimal Risk. Cambridge Quarterly of Healthcare Ethics, 5(3): 362-372.
Glover, J.J. and Holbrook, P.R. 1993 Ethical Considerations. Text Book of Pediatric Critical Care. Edited by Holbrook. Philadelphia: W.B. Saunders Company.
Glover, ML; Kodish, E; Reed, MD 1995 Continuous Proposal Infusion for the Relief of Treatment-Resistant Discomfort in a Terminally Ill Pediatric Patient with Cancer. Journal of Pediatric Hematology/Oncology, 18 (4) 377-380
Goldworth, A 1995 Conflict In The Pediatric Setting: Clinical Judgment Vs. Parental Autonomy. Cambridge Quarterly of Healthcare Ethics, 4: 36-43.
Goldman, Ann 1995 Palliative Care for Children. Palliative Medicine, 9 (3):79-80. 1996 Home Care of the Dying Child. Journal of Palliative Care, 12 (3):16-19.
Goldman, A.; Beardsmore, S.; and Hunt, J. 1990 Palliative Care for Children with Cancer - Home, Hospital or Hospice. Archives of Disease in Childhood, 65 (x):641-643.
Goldstein, Joseph 1982 Medical Care for the Child at Risk(On State Supervention of Parential Autonomy). Who Speaks for the Child?, Willard Gaylin; Ruth Macklin. Plenium Press; New York
Goodare, Heather 1998 Studies That Do Not Have Informed Consent From Participants Should Not Be Published. British Medical Journal, 316:1004-1005
Goodman, N.W. 1992 A Tale of Two Children. British Journal of Hospital Medicine, 48 (2):134.
Goodwin, Mary 1994 Children’s Decisions About Heart-Lung Transplantations. In Children’s Decisions in Health Care Research: Report of the SSRC Consent Conference Series, 5. Edited by Priscilla Anderson and Berry Mayall. London: Institute of Education, University of London.
Goodwin M., Parsons, R., Bickerton, A., and Lask, B. 1995 Systemic Assessment of Children Referred for Heart and Heart-Lung Transplantation. Manuscript submitted for publication.
Gotz, Ilse; Labenbacher, Isabella; and Eichler, I. et al 1997 Health Independent Lung Transplantation Information of Parents of Children with Cystic Fibrosis. Transplantation, 64 (x):5.
Graham, Philip 1991 xxxx In Child Psychiatry. Edited by xxxx England: Oxford Medical Publications. 1994 Children: Problems in Pediatrics. In Principles of Health Care Ethics. Edited by Raanan Gillon. London: John Wiley and Sons Ltd. 1997 Book Review: The Handbook of Children’s Rights: Comparative Policy and Practice. Clinical Child Psychology and Psychiatry, 2(4), 617-629.
Graham, P.; Flynn, D. (in press) A new measure of health-related quality of life for children: Preliminary Findings. Psychology and Health.
Grant, V.U. 1991 Consent in Paediatrics: A Complex Teaching Assignment. Journal of Medical Ethics, 17:199-204.
Gravelle, Anna 1997 Caring For A Child With A Progressive Illness During The Complex Chronic Phase: Parent’s Experience Of Facing Adversity. Journal of Advanced Nursing, 25: 738-745.
Greenberg, E.R.; Chute, C.G. 1988 Social and Economic Factors in the Choice of Lung Cancer Treatment. New England Journal of Medicine, Vol. 318:612-617.
Grier, Holcombe 1996 What Young Research Subjects and Their Families Expect from the Research Establishment and the Research Establishments Response. Ethical and Policy Issues in Research with Children and Adolescents, 147-173
Grisso, T. and Vierling, L. 1978 Minors’ Consent to Treatment: A Developmental Perspective. Professional Psychology, 9:412-427.
Grochowski, Eugene C. and Bach, Shirley 1994 The Ethics of Decision Making with Adolescents. What a Physician Ought to Know. Adolescent Medicine: The State of the Art Review, 5:485-95.
Grodin, M.A. and Alpert, JJ 1983 Informed Consent in Pediatric Care. Children’s Competence to Consent. Edited by Melton, G; Koocher, G; Saks, M. New York: Plenium Press 1988 Children as Participants in Medical Research. Pediatric Clinics of North America, 35(6): 1389-1401.
Grodin, Michael 1994 Mental Health, Behavioral Science and Educational Research. In Ethical and Policy issues in Research with Children and Adolescents. Edited by XXX 182-206
Grodin, Michael; Glantz, L. (eds.) 1994 Children as Research Subjects: Science, Ethics, and Law. Oxford University Press: New York.
Group for the Advancement of Psychiatry: Committee on Child Psychiatry 1989 How Old is Old Enough? The Ages and Rights and Responsibilities. Brunner/Mazel Publishers: New York.
Guarnaccia, Paul Rodriguez, O. 1996 Concepts of Culture and Their Role in the Development of Culturally Competent Mental Hispanic Journal of Behavioral Science, 18 (4) 419-443.
Gulick, Elsie E. 1997 Correlates of Quality of Life Among Persons With Multiple Sclerosis. Nursing Research, 46:(6)305-311. 1998 Symptoms and Activities of Daily Living Trajectory in Multiple Sclerosis: A 10-Year Study. Nursing Research, 47:(3)137-146.
Gunn, Albert E. 1991 Risk - Benefit Ratio: The Soft Underbelly of Patient Autonomy. Issues in Law and Medicine, 7 (2):139-153.
Gustaitis, R. 1988 Right to Refuse Life Sustaining Treatment. Pediatrics, Vol. 81:317-321.
Hall, Pippa 1998 Palliative Care Education for Community-Based Family Physicians: The Development of a Program, The Evaluation, and its Consequences. Journal of Palliative Care, 14(3): 69-74.
Hare, J; Pratt, C. 1992 Agreement Between Patients And Their Self-Selected Surrogates On Difficult Medical Decisions. Archives Internal Medicine, 152: 1049-1054.
Harrison, H. 1993 The Principles For Family-Centered Care. Pediatrics, 92: 643-650.
Harrison C., Kenny, N.P., Sidarous, M. and Rowell, M. 1997 Bioethics For Clinicians: 9. Involving Children in Medical Decisions. Canadian Medical Association Journal, 156 (6):825-8.
Hart, R. 1992 Children’s Participation: From Tokenism to Citizenship. Florence: Unicef.
Harter, S. 1982 The Perceived Competence Scale for Children. Child Development, Vol. 53: 87-97.
Hawkins, Lisa Anne 1992 Living Will Statute: A Minor Oversight. Virginia Law Review, 78(x):1581-1615.
Hayner, Gerri 1998 Optimizing Care through Partnered Decision Making. RWJ Grant Proposal.
Heiligenstein, E.; Jacobsen, P.B. 1988 Differentiating Depression in Medically Ill Children and Adolescents. Journal of the American Academy of Child and Adolescent Psychiatry, Vol. 27:716-719.
Henry, G.L. 1991 Common Sense. Annals of Emergency Medicine, 20 (3):319-20.
Henry, P.F. 1992 Who Speaks for the Children: Consent for Treatment of Minors. Nurse Practitioner Forum, 3 (1):4-5. 1992 Judicial Review of Treatment Consent Issues for Minors. Nurse Practitioner Forum, 3 (2):54-5.
Hinds, Pamela 1998 Studying Clinical Decision-Making by Patients, Parents, and Health Care Providers in Pediatric Oncology. Journal of Pediatric Oncology Nursing, 15(3) Supplement 1: 1-2. 1990 Quality of life in children and adolescents with cancer. Seminars in Oncology Nursing, 6: 285- 291.
Hinds, Pamela; Drew, Donna; DeSwarte-Wallis, Joelle; et al. 1998 Consensus Statements: Decision-Making in Pediatric Oncology. Journal of Pediatric Oncology Nursing, 15(3) Supplement 1: 24
Hinds, Pamela, Oaks, Linda, Furman, Wayne, et al 1997 Decision Making By Parents and Health Care Professionals When Considering Continued Care for Pediatric Patients With Cancer. ONF, 24 (9):1523-1528. 1998 Decision Making in Pediatric Oncology. Journal of Pediatric Oncology Nursing, 15(3). 1996 Coming to terms: Parents’ response to a first cancer recurrence in their child. Nursing Research, 45(3): 148-153.
Hinds, Pamela; Oaks, Linda; Quargnenti, Alice; et al. 1998 Challenges and Issues in Conducting Descriptive Decision-Making Studies in Pediatric Oncology: A tale of two studies. Journal of Pediatric Oncology Nursing, 15(3): 10-17.
Hinds; William 1990 Self-care outcomes in adolescents with cancer. NCI ROI CA 48432
Hinton, John 1998 An Assessment of Open Communication Between People with Terminal Cancer, Caring Relatives, and Others During Home Care. Journal of Palliative Care, 14(3): 15-23.
Hite, Marie 1992 Mom, When am I Going to Get the Treatment and Not Have Muscular Dystrophy Anymore? Washington Post Health, 11.
Hoffman, H. 1986 A summary of values in conflict: resolving ethical issues in hospital care. Making Choices: Ethical Issues. Friedman, E. (ed.) American Hospital Publishing Co: Chicago.
Hoggett, B. 1986 Parents, Children and Medical Treatment: The Legal Issues. Rights and Wrongs in Medicine. Edited by P. Bryne. xxxx: xxxx
Hogue, E.E. 1989 Consent for Minors. Pediatric Nursing, 15 (4):404.
Holder, Angela Rodney 1985 Legal Issues in Pediatrics and Adolescent Medicine. New Haven: Yale University Press. 1987 Minor’s Right to Consent to Medical Care. JAMA, 257 (x):3400 1988 Disclosure and Consent Problems in Pediatrics. Law, Medicine and Health Care, 16:219-28. 1989 Children and Adolescents: Their Right to Decide About Their Own Health Care. Children and Health Care. Edited by Kopelman and Moskop. Boston: Kluwer Academics 1992 Childhood Malignancies and Decision Making. Yale Journal of Biology and Medicine, 65:99-104. 1983 Teenagers and Questionaire Research. IRB: A Review of Human Subjects Research, 5(3): 4-6. 1981 Can Teenagers Participate in Research without Parental Consent? IRB: A Review of Human Subjects Research, 3(2): 5-7. 1988 Disclosure And Consent Problems In Pediatrics. Law Medicine and Healthcare, 16: 219- 228.
Holmes, Robert L. 1989 Children and Health Care Decision Making: A Reply to Angela Holder. In Children and Health Care. Edited by Kopelman and Moskop. Boston: Kluwer Academics. 1998 Consent and Decisional Authority in Children’s Health Care Decision Making. In Children and Health Care. Edited by Kopelman and Moskop. Boston: Kluwer Academics.
Hood, Catherine A.; Hope, Tony; and Dove, Philip 1998 Videos, Photographs, and Patient Consent. British Medical Journal, 316: 1009-1011.
Inui, T; Carter, W 1982 Outcome Based Doctor-Patient Interaction Analysis: I: Comparison Of Techniques. Med Care, 20: 535-549.
Ivan, T.M.; Glazer, J.P. 1994 Quality of Life in Pediatric Psychiatry: A new outcome measure. Child and Adolescent Psychiatric Clinics of North America, 3: 599-611.
Jacobs, J; Potenzc 1991 The Use Of Judgment Heuristics To Make Social And Object Decisions: A Developmental Perspective. Child Development, 62: 166-178
Jacobsen, P.B.; Manne, S.L.; Gorfinkle, K.; Schorr, O.; Rapkin, B.; Redd, W.H. 1990 Analysis of child and Parent Behavior During Painful Medical Procedures. Health Psychology, Vol. 9:559-576.
James, Linda and Johnson, Barbara 1997 The Needs of Parents of Pediatric Oncology Patients During the Palliative Care Phase. Journal of Pediatric Oncology Nursing, 14 (2):83-95.
Jackson, Jennifer 1994 Unproven Treatment in Childhood Oncology--How Far Should Paediatricians Co-Operate? Commentary. Journal of Medical Ethics, 20:77-9
Janofsky, J and Starfield, B. 1981 Assessment of Risk in Research on Children. Journal of Pediatrics, 89:842.
Jefferson, S., White, Becky Cox and Louis, Penelope, T. 1991 Use of the Natural Death Act in Pediatric Patients. Critical Care Medicine, 19 (7):901-905.
Jenkins, R and Parron, D. 1995 Guidelines for Adolescent Health Research: Issues of Race and Class. Journal of Adolescent Health, 17 (5):313-.
Jenks, Joan 1993 The Pattern Of Personal Knowing In Nurse Clinical Decision Making. Journal of Nursing Education, 32(9): 399-405.
Jones, A.H. 1996 Darren’s Case: Narrative Ethics in Perri Klauss’s Other Women’s Children. Journal of Medicine and Philosophy, 21 (3):267-86.
Jonsen, Albert R. 1989 Ethical Issues in Organ Transplantation. In Medical Ethics. Edited by Robert Y. Veatch Boston: Jones and Bartlett Publishers.
