K - S
Ethics and Decision-Making Subgroup Bibliography K - S
Kamps, W.A.; Akkerboom, J.C., Kingma, A. and Humphrey, G.B. 1987 Experimental Chemotherapy in Children with Cancer: A Parent’s View. Pediatric Hematology and Oncology, 4 (2):117-24.
Kaplan, Robert. Utility Assessment for Estimating QALYS (Quality Adjusted Life Years).
Kaplan, SH; Greenfield, S. 1989 Assessing The Effects Of Physician-Patient Interactions On The Outcomes Of Chronic Disease. Med Care, 27.
Kapp, Marshall B. 1983 Children’s Assent for Participation in Pediatric Protocols. Clinical Pediatrics, 22: 275-278
Kassirer, J. 1994 Incorporating Patient’s Preferences Into Medical Decisions. New England Journal of Medicine, 330: 1895-1896.
Kastenbaum, Robert 1995-96 How Far Can an Intellectual Effort Diminish Pain? Omega: Journal of Death and Dying.32 (2):123-164.
Katerberg, Robert J. 1998 Institutional Review Boards Research On Children, and Informed Consent of Parents: Walking the Tightrope Between Encouraging Vital Experimentation and Protecting Subjects’ Rights. Journal of College and University Law, 24:(3)545-579.
Kaufmann Ralph 1994 Drug Trials in Children: Ethical, Legal, and Practical Issues. Journal of Clinical Pharmacology, 34: 296-299.
Keeney, Ralph 1994 Sounding Board: Decisions about life-threatening risks. The New England Journal of Medicine, 331(3): 193-196.
Keith-Spiegel, Patrica 1983 Children and Consent to Participate in Research. Children’s Competence to Consent. Edited by Melton, G; Koocher, G; Saks, M. New York: Plenium Press
Kendrick, Kevin 1994 An Advocate for Whom - Doctor or Patient? How Far Can a Nurse be a Patient’s Advocate. Professional Nurse, 9 (12): 826-29.
Kenny, Nuala and Frager, Gerri 1996 Refractory Treatment and Terminal Sedation of Children: Ethical Issues and Practical Management. Journal of Palliative Care, 12 (3):40-5.
Kennedy, I 1988 Treat Me Right. Oxford: Oxford University Press.
Kent, G 1995 Shared Understanding for Informed Consent: The Relevance of Psychological Research on the Provision of Information. Social Science and Medicine, 43: 1517-1523
Kessel, R. 1993 In The UK, Children Can’t Just Say No. Hastings Center Report, 23(2): 20-21.
Kidder, David 1998 Hospice: Does It Still Save Medicare Money? Journal of Palliative Medicine, 1(2): 151- 154.
King, N.M. and Cross, A.W. 1989 Children as Decision Makers: Guidelines for Pediatricians. Journal of Pediatrics, 115 (x):10-16.
King, NMP; Cross, AW 1996 Children as decision-makers: Guidelines for Pediatricians. Journal of Pediatrics, 115: 10-16.
Kinzbrunner, Barry M. 1998 Hospice: 15 Years and Beyond in the care of the dying. Journal of Palliative Medicine, 1(2): 127-137.
Kirkpatrick, J. 1974 Dilemma of Trust: Relationship between medical care givers and parents of fatally ill children. Pediatrics, 54(2): 169-175.
Kluge, Eike-Henner 1995 Informed Consent by Children: The New Reality. Journal of the Canadian Medical Association Journal, 152 (9):1495-7.
Koch, T. and Rowell, M. 1997 A Pilot Study on Transplant Eligibility Criteria: Valuing the Story in Numbers. Pediatric Nursing, 23 (2):160-3.
Kodish, E. and Cuttler, W. 1996 Ethical Issues in Emerging New Treatments such as Growth Hormone Therapy for Children with Down’s Syndrome and Prader-Willi Syndrome. Current Opinion in Pediatrics, 8 (4): 401-5.
Kodish, E.; Lantos, J.D.; Siegler, M.; Kohrman, A.; and Johnson, T.L. 1990 Bone Marrow Transplantation in Sickle Cell Disease: The Trade Off Between Early Mortality and Quality of Life. Clinical Research, 38 (4):694-700.
Kodish, E.; Lantos, J.D.; Siegler, M. 1990 Ethical Considerations in Randomized Controlled Clinical Trials. Cancer, 65 (10Suppl): 2400-4. 1991 The Ethics of Randomization. CA: A Cancer Journal for Clinicians, 41 (3); 180-6.
Kodish, ED; Lantos, JD; Stocking, C. 1991 Bone Marrow Transplantation for Sickle Cell Disease: A Study on Parent’s Decisions. In New England Journal of Medicine, 325: 1349-53 .
Kodish, E.; Murray, T.H.; and Shurin, S. 1994 Cancer Risk Research: What Should We Tell Subjects. Clinical Research, 42 (3):396-402.
Kodish, E; Pentz, R; Noll, R; Ruccione, K; Buckley, J; and Lange, B. 1998 Informed Consent in Children’s Cancer Group: Results of Preliminary Research, In Cancer, xx(x): xxx
Kodish, E.; Post, S.G. 1995 Oncology on Hope. Journal of Clinical Oncology, 13(9):1817.
Kodish, E; Shina, D; Morrison, S; Dahms, B 1996 Wilm’s Tumor with Pulmonary Nodules Persisting after Chemotherapy and Radiation. Medical and Pediatric Oncology, 25 (5): 414-419
Kodish E, Singer P, Siegler M. 1996 Ethical Issues Chapter 57.3. In Cancer Principles and Practice of Oncology. 5th Edition, Devita, V.; Hellman, S; and Rosenberg, SA. JP Lippincott Publishers: Philadelphia, PA
Kodish, E.; Stocking, C., Ratain, M.J., Rohrman, A., Sigler, M. 1992 Ethical Issues in Phase I Oncology Research: A Comparison of Investigators and IRB Chairpersons. Journal of Clinical Oncology, 10 (11): 1810-6.
Kohler, J.A. and Radford, M. 1985 Terminal Care for Children Dying of Cancer: Quantity and Quality of Life. British Medical Journal, 291:115-6.
Kohrman, Arthur and Kaufman, Joanna 1993 Home Care for Children with Technological Needs. A Report. LaRabida Children’s Hospital: Chicago.
Koocher, G.P. 1974 Conversations with Children about Death: Ethical Considerations in Research. Journal of Clinical Child Psychology, 3 (2):19-21. 1984 Competence to Consent: Psychotherapy. In Children’s Competence to Consent. Edited by Melton, G; Koocher, G; Saks, M. New York: Plenium Press. 111-127
Koocher, GP; Keith Spiegel, PC Children, Ethics and Law. Lincoln: University of Nebraska Press
Koocher, Gerald P. and DeMaso, David Ray 1990 Children’ Competence to Consent to Medical Procedures. Pediatrician, 17 (2):68-73.
Kopelman, L. 1978 On the Right to Information and Freedom of Choice for the Dying: Is it for Minors? In The Child and Death. Edited by O.J. Sahler. St. Louis: The CV Mosey Company.
1989 When is the Risk Minimal Enough for Children to Be Research Subjects. In Children and Health Care. Edited by Kopelman and Moskop. Boston: Kluwer Academics.
Kopelman, L. and Moskop. J. (eds.) 1989 Children and Health Care: Moral and Social Issues. Boston: Kluwer Academics.
Kopelman, L. 1997 Children and Bioethics: Uses and Abuses of the Best-Interests Standard. The Journal of Medicine and Philosophy, 22: 213-217 1997 The Best Interests Standard as Threshold, Ideal and Standard of Reasonableness. The Journal of Medicine and Philosophy, Vol.22: 271-289. 1995 Children: Health-Care and Research Issues Section III. Health-Care and Research Issues. Encyclopedia of Bioethics Vol. 1, Simon and Schuster Macmillan: New York, New York.
Koren, Gideon; Carmeli, D. 1993 Maturity of Children to Consent to Medical Research: The Babysitter Test. Journal of Medical Ethics, Vol. 19: 142-147
Koran, Gideon 1993 Text Book of Ethics in Pediatric Research. Florida: Krieger Publication Company.
Koran, Gideon, Carmelli, Daphnai, Carmelli, Yoram and Haslam, Robert. Maturity of Children to Consent to Medical Research: The Babysitter Test. Journal of Medical Ethics, 57 (415).
Korgaonkar, G. and Tribe, D. 1993 Children and Consent to Medical Treatment. British Journal of Nursing, April 8-21, 2 (7):383-4.
Kornetsky, Susan. Information about Clinical Research. Children’s Hospital Information Packet. 1997 Developmental Changes in Research Risks and Benefits, Material Distributed at PRIM-R Meetings, December 8, 1997, Boston, MA. 1997 Revising the Expedited Review Criteria for Pediatric Research, Paper presented at PRIM-R Meetings, December 8, 1997, Boston, MA. 1997 Request for Discarded/Stored Human Biological Specimens for Research. Committee on Clinical Invest., Research Protocol Admin. 1997 Waiver of Parental Consent, Material Distributed at PRIM-R Meetings, December 8, 1997, Boston, MA.
Kristjanson, Linda; Nikoletti, Suzanne 1998 Congruence Between Patients’ and Family Caregivers’ Perceptions of Symptom Distress in Patients with Terminal Cancer. Journal of Palliative Care, 14(3): 24-32.
Krivit, W.; Shapiro, E.; Hoogerbrugge, P.M.; Moser, H.W. 1992 State of the Art Review Bone Marrow Transplantation Treatment for Storage Diseases. Keystone 87-96.
Kuczweski, Mark 1996 Reconceiving the Family: The Process for Consent in Medical Decision Making. Hastings Report, 26 (2):30-37.
Kuehl, Karin D.; Shapiro, Sivasubaamarian, K.N. 1992 Should a School Honor a Student’s DNR Order? Kennedy Institute of Ethics Journal, 2 (1):1-3.
Kurtz, Z. 1995 Do Children’s Rights to Health Care in the United Kingdom Ensure Their Best Interest? Journal of the Royal College of Physicians of London, 9 (x):508-516.
Kutner; Ruavk; and Raffin 1991 Defining Patient Competence for Medical Decision Making. Chest 100 (5):1404-9.
LaMontagne, L. 1990 Stress and Coping of Parents of Children in a Pediatric Intensive Care Unit. Heart and Lung, Vol. 19:416-421.
Lamb, D. 1994 What is Death? In Principles of Health Care Ethics. Edited by R. Gillon and A. Lloyd. Chichester: John Wiley Ltd.
Landsdowne, R. 1996 Children in Hospital. Oxford University Press: Oxford. 1998 Listening to children: have we gone too far (or not far enough?) Journal of the Royal Society of Medicine, 91: 457-461. 1998 The Ladder of Participation. Royal Society of Medicine Address.
Lankton, J.; Batchelder, B.; Ominsky, A. 1977 Emotional Responses to Detailed Risk Disclosure for Anesthesia a Prospective, Randomized Study. Anesthesiology, Vol. 46:294-296.
Lansky, S.B.; Cairns, N.V. 1985 Psychiatric Syndromes in Pediatric Patients. Psychiatric Medicine, 405-417.
Lansky, S.B.; List, M.A.; Lansky, L.L. 1987 The Measurement of Performance in Childhood Cancer Patients. Cancer, Vol. 60: 1651- 1656.
Lantos, J.D., Berger, A.C. and Zucker, A.R. 1993 Do Not Resuscitate Orders in a Children’s Hospital. Critical Care Medicine, 21:52-55.
Lantos, John; Frader, Joel 1990 Sounding Board: Extracorporeal Membrane Oxygenation and the Ethics of Clinical Research in Pediatrics. New England Journal of Medicine, 323: (6)409-413.
Lantos, J. and Kohrman, P. 1991 Ethical Aspects of Pediatric Home Care. In Specialized Family Foster Care for Medically Complex Children. Edited by N. Hochstadt and D. Yost. New York: Gordon and Breach. 1992 Ethical Aspects of Pediatric Home Care. Pediatrics, 89 (5):920-924.
Lantos, John D; Tyson, Jone; Allen, Alexander, et al. 1990 Withholding and Withdrawing Life Sustaining Treatment in Neonatal Intensive Care: Issues for the 1990’s.
Laor, Nathaniel 1987 Toward Liberal Guidelines for Clinical Research with Children. Medicine and Law, Vol.6: 127-137.
Lauer, ME 1997 Ongoing Challenges in Pediatric Hospice Care. Acta Paediatrica. 86:(10)1037-9.
Lavelle-Jones, C. 1993 Factors affecting the quality of informed consent. British Medical Journal, 306: 885-890.
Lee, L. 1991 Ethical Issues Related to Research Involving Children. Journal of Pediatric Oncology Nursing, 8 (1):24-9.
Lee, Robert 1994 Deathly Silence: Doctors’ Duty to Disclose Dangers of Death. In Death Rites, Law & Ethics At The End of Life. Edited by Robert Lee and Derek Morgan. Routledge: New York, NY.
Lee, M; Cohen, S 1994 Parent-Child Interactions With Pediatric Bone Marrow Transplant Patients. Journal of Psychosocial Oncology, 12(4): 43-60.
Lee, Simmon 1990 Whose Consent? Philosophical Ethics in Reproductive Medicine: Proceedings of the First International Conference on Philosophical Ethics in Reproductive Medicine. Edited by David R. Bromham; Maureen E. Dalton; and Jennifer Jackson. New York: Manchester University Press.
Leiken, Sanford. The Role of Adolescents in Decision Concerning Their Cancer Therapy. Cancer Supplement, 71:3342-46. 1983 ’Minors’ Assent or Dissent to Medical Treatment.’ Journal of Pediatrics, 102 (2):169-176. 1985 Beyond Proforma Consent For Childhood Cancer Research. Journal of Clinical Oncology, 3 (3):420-428. 1989 A Proposal Concerning Decisions to Forgo Life-Sustaining Treatment for Young People. Journal of Pediatrics, 115 (1):17-22.
Leiken, Sanford and Connell, Kathleen 1983 Therapeutic Choices By Children With Cancer. Journal of Pediatrics, 103 (1):167-9.
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Lesko, Lynna; Dermatis, Helen; Penman, P. and Holland, Jimmie 1989 Patients’, Parents’ and Oncologists’ Perceptions of Informed Consent for Bone Marrow Transplantation. Medical and Pediatrics Oncology, 17 (3):181-7.
Leven, M; Wright, I; Griffiths, G 1996 Is Informed Consent in Neonatal Randomised Clinical Trials Ritual? Lancet, 347: 475
Levetown, Marcia 1995 Different - and Needing to Be More Available. Hospice Magazine, Winter 19-22. 1996 Ethical Aspects of Pediatric Palliative Care. Journal of Palliative Care, 12 (3):35-39
Levetown, Marcia 1997 Pediatric Hospice Care: Not the Care of Small Adults. Home Health Care Management & Practice, 9 (5):36-42 1998 Palliative Care in the Intensive Care Unit. New Horizons, 6(4): 383-397.
Levetown, Marcia, Carter, and Michele A. 1998 Child-Centered Care in Terminal Illness: An Ethical Framework. In Oxford Textbook of Palliative Medicine, Second Edition. Edited by Derek Doyle, Geoffrey W. C. Hanks and Neil MacDonald. New York: Oxford University Press. 1994 Limitations and withdrawals of medical intervention in pediatric critical care. JAMA, 272(16): 1271-1275.
Levine, Robert 1989 Children as Research Subjects. In Children and Health Care. Edited by Kopelman and Moskop. Boston: Kluwer Academics. 1995 Adolescents as Research Subjects Without Permission of their Parents or Guardians: Ethical Considerations: Journal of Adolescent Health, 17 (5):287-297.
Levinson, Roter 1997 Physician-patient communication: the relationship with malpractice claims among primary care physicians and surgeons. JAMA, 277(7): 553-559.
Lewis, Charles E 1983 Decision Making Related to Health: When Could/Should Children Act Responsibly? Children’s Competence to Consent, Edited by Melton, G; Koocher, G; Saks, M. New York: Plenium Press 75-91.
Lewis, Mary Ann and Lewis, Charles 1990 Consequences of Empowering Children to Care for Themselves. Pediatrician, 17:63-67.
Liben, Stephen 1996 Pediatric Palliative Medicine: Obstacles to Overcome. Journal of Palliative Care, 12 (3):24-8. 1998 Home Care for Children with Life Threatening Illness. Journal of Palliative Care, 14(3): 33-38.
Lickiss, JN; Wiltshire, J; Glare, PA 1994 Central Sydney Palliative Care Service: Potential and Limitations of an Integrated Palliative Care Service Based in a Metropolitan Teaching Hospital. Annals Academy of Medicine, 23 (2) 264-270.
Light, Donald. The Sociological Calendar: An Analytic Tool for Fieldwork Applied to Medical and Psychiatric Training. American Journal of Sociology, 80 (5):1145-1163, 1997 The Real Ethics of Rationing. British Medical Journal, 315 (x):112-115. 1997 Poor Bets on the Pools. In Health Service Journal, 16:22.
Light, D. and McGee, G. 1998 On the Social Embeddedness of Bioethics. In Bioethics and Society. Edited by Raymond De Vuees and Jarrardon Subedi. New Jersey: Prentice Hall.
Lindquist, R; Banasik, J. 1993 Determining AACN’s research priorities for the 90’s. American Journal of Critical Care, 2: 110-117.
Lipsett, MB 1982 On the Nature and Ethics of Phase I Clinical Trials of Cancer Chemotherapy. Journal of American Medical Association, 248: 941-942.
Llewellyn-Thomas, H, McGreal, MJ; Theiel, EC 1991 Parents Willingness to Enter Clinical Trials: Measuring the Association With Perceived Benefit and Preference for Decision Participation. Social Science and Medicine, 32: 35-42.
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Mahon, M.M. 1990 The Nurse’s Role in Treatment Decision Making for the Child with Disabilities. Issues in Law and Medicine, 6 (3):247-68.
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McNeil, Carmelita; Britton, Susan 1998 Closure of an In-Hospital Palliative Home Care Service. Journal of Palliative Care, 14(3): 84-90.
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