T - Z
Ethics and Decision-Making Subgroup Bibliography T - Z
Tammelleo, A.D. 1995 Capacity Of Incompetent Patients To Give Informed Consent. Reagan Report on Medical Law, 28 (4):1.
Tammivaara, J. And Enright, D.S. 1986 On Eliciting Information: Dialogues with Child Informants. Anthropology and Education Quarterly, 17:218-238.
Tapp, June Louin; Melton, Gary 1982 Preparing Children for Decision making: Implications of Legal Socialization Research. Children’s Competence to Consent, Edited by Melton, G; Koocher, G; Saks, M. New York: Plenum Press 1983
Task Force on Palliative Care 1998 National Policy Statements in End-of-Life Care: Precepts of Palliative Care. Journal of Palliative Medicine, 1(2): 109-112.
The National Cancer Alliance 1996 Patient Centered Cancer Services’ What Patients Say. Oxford: England.
Thomas, Annette 1997 Patient Autonomy And Cancer Treatment Decisions. International Journal of Palliative Nursing, 3(6): 317-323.
Thomas, D.E. 1983 Bone Marrow Transplantation: A Life-Saving Applied Art. JAMA, 249(25):28-36.
Thompson, Larry 1992 Researchers Call for Time Out on Cell-Transplant Research. Science, 257:738.
Thompson, Ross 1990 Vulnerability in Research: A Developmental Perspective on Research RISK. Child Development, 64: 1-16. 1990 Behavioral Research Involving Children: A Developmental Perspective on RISK. In IRB 12(2)1-6. Developmental Changes in Research RISK and Benefit: A Changing Calculus of Concerns. In Social Research on Children and Adolescents: Ethical Issues. Barbara Stanley and Joan Sieber, 31-64. Sage Newbury Park, CA. 1993 A Developmental Calculus of Research Risk and Benefit. Ethical and Policy Issues in Research in Adolescents, pg. 25-38.
Thompson, RA 1988 Development of Children’s Inferences of the Emotions of Others. Developmental Psychology, 23: 124-131
Thurber, F.W., Deatrick, J.A. and Grey, M. 1992 Children’s Participation in Research: Their Right to Consent. Journal of Pediatric Nursing, 7 (3):165-70.
Tinsley, B; Holtgrave, D. 1995 Developmental Status, Gender, Age, And Self-Reported Decision Making Influences On Student’s Risky And Preventative Health Behaviors. Health Education Quarterly, 22: 244- 259.
Titman, Penny; Smith, Marjorie; Graham, Phillip xxx Assessment of the Quality of Life of Children. Clinical Child Psychology and Psychiatry, 2(4): 597-604.
Tobias, VS 1998 Changing the British Medical Journal’s Position on Informed Consent Would be Counter-productive. British Medical Journal, 316:1001-1002.
Todres, D. 1993 Communication Between Physician, Patient, and Family in the Pediatric Intensive Care Unit. Critical Care Medicine, 21 (9) supplement: S383-S386.
Trigg, Michael 1986 The Decision in Pediatrics to Go Ahead With Bone Marrow Transplant for a Pediatric Malignancy. Bone Marrow Transplantation, 1 (2):111-114. 1988 Bone Marrow Transplantation for Treatment of Leukemia in Children. Pediatric Clinic of North America, Vol. 35:933-948.
Troug, RD 1993 Randomized Controlled Trial of Potentially Life Saving Therapies: Are They Ethical. Coronary Artery Disease, 4: 835-836.
Trudeau, M.E. 1993 Informed Consent: The Patient’s Right to Decide. Journal of Psychosocial Nursing and Mental Health Services, 31 (6):9-12, 30-1.
Truman, J.T. and Brant, J. 1984 Ethical and Legal Issues in the Treatment of Children with Cancer: Our Responsibilities to the Parents, to the Child, and to the Other Similarly Afflicted Children. American Journal of Pediatrics Hematology and Oncology, 6 (3):313-7.
Truog, R.D. 1992 Beyond Futility. Journal of Clinical Ethics, 3 (2):143-4.
Tsevat, J; Cook, E. 1995 Health Values Of The Seriously Ill. Ann Intern Med, 122: 514-520.
Turner, Kristen S; Lickiss, J. Norelle 1996 Post-graduate Training in Palliative Medicine: The Experience of the Sydney Institute of Palliative Medicine. Palliative Medicine, 11: 389-394.
Tversky, A; Kahneman, D. 1981 The framing of decisions and the psychology of choice. Scie, 211: 453-458.
United Kingdom 1989 Children’s Act 1989: An Introductory Guide for the NHS. HMSO: London.
United Nations 1989 Convention on The Rights of the Child. Geneva.
Uzark, K 1992 Caring for Families of Pediatric Transplant Recipients: Psychosocial Implications, Critical Care Nursing Clinics of North America, 4(2):255-61.
Vachon, Mary 1998 Psychosocial Needs of Patients and Families. Journal of Palliative Care, 14(3): 49-56.
Van Der Geest 1996 Grasping The Children’s Point of View? An Anthropological Reflection. In Children, Medicines and Culture. Edited by P. Bush; D. Trakas; E. Sanz; R. Wirsing; T. Vaskilampi and A. Prout. Haworth Press: New York, NY
Van Der Geest, Suaak, Whyte, Reynolds, Susan 1989 The Charm of Medicines: Metaphors and Metonyms. Medical Anthropological Quarterly, 3 (4):345-367.
Van der Heida, A.; Van der Moss, P.J.; Van der Wal, G; Kollie, L.A.A. de Lerur, R.; Holl, R.A 1998 The Role of Parents in End-of-Life Decisions in Neonatology: Physicians’ Views and Practices. Pediatrics, 101(3):413-418
Van Eys, Jan 1978 Research and Children: Medical Imperatives, Ethical Quandaries and League Constraints. Baltimore: University Park Press. 1986 Children as Decision Makers. Journal of the Association of Pediatric Oncology Nurses, 3(3): 18-22 1987 Ethical and medicolegal issues in pediatric oncology. Hematology Oncology Clin N Amer, 1: 841-848. 1986 Medical decisions in the selection of therapy for the child with cancer. Cancer, : 454-460.
Veatch, Robert M. 1989 Medical Ethics. Boston: Jones and Bartlett Publishers. 1997 Consent Confidentiality and Research. New England Journal of Medicine, 336 (12): 869- 870. 1995 Abandoning Informed Consent. Hastings Center Report, Vol. 25:5-12.
Viscusi, W. Kip Discounting Health Effects for Medical Decisions. In xxxxxx. Edited by xxxxxx.. xxxxxx:xxxxxx
Visser, H.K.A.; Aartsen, H.G.M.; and de Beaufort, Lb. 1992 Medical Decisions Concerning the End of Life in Children in the Netherlands. American Journal of Diseases of Children, 146:1439-31.
Von Winterfeldt; Edwards, W. 1986 Decision Analysis And Behavioral Research. Cambridge University Press: London, England.
Vora, Ariana 1998 An Anatomy Memorial Tribute: Fostering a Humanistic Practice of Medicine. Journal of Palliative Medicine, 1(2): 117-122.
Wadlington, Walter J. 1983 Consent to Medical Care to Minors: the Legal Framework. In Children’s Competence to Consent, Edited by Melton, G; Koocher, G; Saks, M. New York: Plenum Press.
Waksler, F. 1986 Studying Children: Phenomenological Insights. Human Studies, 9:71-82.
Walker, C.L. 1988 Informed Consent With Children. Journal of the Association of Pediatric Oncology Nurses, 15(x):38-40.
Wallace, A.C. and Jackson, S. 1995 Establishing a District Palliative Care Team For Children. Child: Care, Health and Development, 21 (6):383-5.
Walsh, Declan 1998 The Medicare Hospice Benefit: A critique from Palliative medicine. Journal of Palliative Medicine, 1(2): 147-149.
Walterspiel, JN 1990 Informed Consent: Influence on Patient Selection Among Critically Ill Premature Infants. Pediatrics, 85: 119-121.
Wanzer, SH; Adelstien 1984 The physicians’ responsibility toward hopelessly ill patients. New England Journal of Medicine, 320: 955-959.
Warnock, Mary 1998 Informed Consent-A Publisher’s Duty. British Medical Journal, 316: 1002-1003.
Watson, M.; Greer, S.; Young, et al. 1988 Development of a Questionnaire Measurement to Cancer: The MAC Scale. Psychological Medicine, Vol. 18:203-209.
Weiler, K and Helms, L. 1992 Who’s in Charge? Guardianships and Children. American Journal of Maternal-Child Nursing, 17(x):232-35.
Weir, Robert F. 1989 Abating Treatment With Critically Ill Patients. New York: Oxford University Press.
Weir, Robert; Horton J. 1995 Genetic Research, Adolescents and Informed Consent. Theoretical Medicine 16: 347-373
Weir and Peterson Affirming the Decisions Adolescents Make About Life and Death. Unpublished Manuscript.
Weiss, Berry D; Coyne, Cathy 1997 Communicating with Subjects Who Cannot Read. New England Journal of Medicine, 337 (4): 272-273.
Westwood, A.T.R.; Robinson, W.M.; Ravilly, S.; Berde, C.; Wohl, M.E. 1998 Terminal Care in Cystic Fibrosis: Hospital Versus Home? Pediatrics, 102(2):436-437.
Weisz, V. 1996 Risks and Benefits of Pediatric Bone Marrow Donation: A Critical Need for Research. Behavioral Sciences & the Law. 14(4):375-91
Weithorn, L.A 1983a Children’s Capacities to Decide About Participation in Research. IRB: A Review of Human Subject Research, 5: (1)5- 1983b Involving Children in Decisions Affecting Their Own Welfare: Guidelines for Professionalism. In Children’s Competence to Consent. Edited by G.B. Melton, G.P. Koocher, and M.J. Saks. New York: Plenum Press. 1985 Children’s Capacities for Participation in Treatment Decision Making. In Emerging Issues in Child Psychiatry and the Law. Edited by D.H. Schetky and E.P. Enedek. New York: Brunner/Mazel.
Weithorn, L.A. and Campbell, Susan 1982 The Competency of Children and Adolescents to Make Informed Treatment Decisions. Child Development, 53 (6):1589-1598.
Weithorn L.A. and Scherer, D.G. 1994 Children’s Involvement in Research Participation Decisions: Psychological Considerations. In Children as Research Subjects: Science, Ethics and Law. Edited by M. Grodin and L. Glantz. New York: Oxford University Press.
Weiler, K. et al 1992 Who’s In Charge? Guardianships and Children. American Journal of Maternal Child Nursing, 17 (5):232-5.
Weisstub, David N.; Arboleda-Florez, J. 1996 Establishing the Boundaries of Ethically Permissible Research with Special Populations. Health Law in Canada, 17(2): 45-63.
Wheeler, P.R.; Lange, N.F.; and Bertolone, S.U. 1983 Improving Care for Hospitalized Terminally Ill Children: A Practical Model. Hospice Approaches to Pediatric Care. Edited by C.A. Corr and D.M. Corr. New York: Springer Publishing.
Whiting, M. 1997 Developing Palliative Care for Children, Pediatric Nursing, 9 (1):3.
Wiley, F.M.; House, K.U. 1988 Bone Marrow Transplants in Children. Seminars in Oncology Nursing, Vol. 4:31-40.
Willard, C 1995 Informed Consent In The Oncology Setting. Journal of Cancer Care, 4: 147-151.
Wilson, Richard 1994 Sharing Decisions with Children. In Children’s Decisions in Health Care and Research: Report of the SSRC Consent Conference Series. Series 5. Edited by Priscilla Anderson and Berry Mayall. London: SSRC Institute of Education, University of London.
Wiser, Lawrence 1991 Extracorporeal Membrane Oxygenation in Neonates. New England Journal of Medicine, 324 (12): 849-850.
Wissow, L; Roter, DL. 1994 Pediatrician Interview Style And Mother’s Disclosures Of Psychosocial Issues. Pediatrics, 93: 289-295.
Wolf, Susan M. xxxx Gender, Feminism, and Death: Physician-Assisted Suicide and Euthanasia (ch.10). In Feminist Perspectives on Specific Problems in Bioethics, 282-317.
Wynne, A 1989 Is it Any Good? The Evaluation of Therapy by Participants in Clinical Trial. Social Science and Medicine, 29: 1289-1297.
Yamamoto, L.G., Young, L.L. and Roberts, J.L. 1997 Informed Consent and Parental Choice of Anesthesia and Sedation for Repair of Small Lacerations in Children. American Journal of Emergency Medicine, 15(3):285-9.
Yellen, SB 1995 Someone To Live For: Social Well-Being, Parenthood Status, And Decision-Making In Oncology. Journal of Clinical Oncology, 13(5): 1255-1264. 1996 Social well-being and decision making in oncology. Topics on supportive care in oncology, 19: 7-8. 1994 Age and clinical decision making in oncology patients. Journal of National Cancer Institute, 86: 1766-1770.
Yeoh, C.; Kiely, E. and Davies 1994 Unproven Treatment in Childhood Oncology: How Far Should Paediatricians Cooperate. Journal of Medical Ethics, 20(2):75-6.
Yuen, Kevin; Barrington, Dianne 1998 Educating Doctors in Palliative Medicine Development of a Competency-Based Training Program. Journal of Palliative Care, 14(3): 79-82.
Zabora, J; Smith, E 1992 The Family: The Other Side Of Bone Marrow Transplantation. Journal Psychosocial Oncology 10(1): 35-46.
Zaner, RM; Bliton, MJ 1991 Decisions In The NICU: The Moral Authority Of Parents. Child Health Care, 20: 19-25.
Zylicz, Z.; Milland, Peter H.; Wehle, and Bentil, et al. 1991 European Support for Euthanasia? Bulletin of Medical Ethics, 69(x):25-27.
Zinner, Susan E. 1995 The Elusive Goal of Informed Consent by Adolescents. Theoretical Medicine, 16: 323-331.
