The American Society of Clinical Oncology (ASCO) is the leading professional organization representing physicians who treat people with cancer.

The Association of American Medical Colleges has as its purpose the improvement of the nation's health through the advancement of medical schools and teaching hospitals. Web site includes listing of major medical conferences.

A project of the Oregon Health Sciences University, CliniWeb is an index and table of contents to clinical information on the Internet. It now allows search terms to be entered in five different languages (English, German, French, Spanish, Portuguese) and has direct links to MEDLINE searches via the PubMed system at the National Library of Medicine.

The End-of-Life Nursing Education Consortium (ELNEC) offers courses for undergraduate faculty, clinical end-of-life care educators and other continuing education/staff development educators. The ELNEC project, a comprehensive, national education program to improve end-of-life care by nurses, is funded by a major grant from The Robert Wood Johnson Foundation. Primary project goals are to develop a core of expert nursing educators and to coordinate national nursing education efforts in end-of-life care.

Points users to a comprehensive and frequently cited lists of health-related resources. A service of the Hardin Library for the Health Sciences at the University of Iowa.

Information on Sarah Lawrence College's Master's Degree Program in Health Advocacy. It has provided a leadership role in defining this new field and in training professionals to improve people's access to and use of an increasingly complex health care system.

Health Gate is a provider of medical, health, and wellness information on the World Wide Web. Health Gate offers an extensive constantly enlarging array of content for physicians, medical researchers, and consumers that is easy and inexpensive to use while maintaining the highest standards of academic and scientific integrity.

Johns Hopkins University AIDS Service home page.

The Population-based Palliative Care Research Network (PoPCRN), based at the University of Colorado Health Sciences Center in Denver, Colorado as a means for conducting on-going studies of care at the end of life. Their Web site contain detailed information about their research studies, newsletters, and sites that support their research.

The Center to Advance Palliative Care (CAPC) is a resource to hospitals and other healthcare settings interested in developing palliative care programs. CAPC is a national initiative supported by The Robert Wood Johnson Foundation with direction and technical assistance provided by Mount Sinai School of Medicine.

The mission of the Lance Armstrong Foundation is to enhance the quality of survival of those diagnosed with, through, and beyond cancer. The LAF seeks to promote the optimal physical, psychological, and social recovery and care of cancer survivors and their loved ones.

Web site dedicated to long-term changes to improve health care for dying persons and their families through technical assistance to innovative demonstration projects addressing particular challenges to existing models of hospice and palliative care.

The AMDA Foundation, an independent not-for-profit organization, serves as the research arm of AMDA. The Foundation's mission is: "The AMDA Foundation advances excellence in patient care through research and its translation into long term care practice to support the members and mission of the American Medical Directors Association (AMDA)." The Foundation also takes an active role in outreach to residents, fellows and young career physicians with an interest in long term care. The Foundation sponsors the following programs and services: * The Long Term Care Research Network is a group of community-based medical directors that conduct outcomes research. All AMDA members are eligible and encouraged to join. * The AMDA Futures Program is an intensive learning experience designed to expose residents and fellows to the numerous career opportunities in long term care and support their attendance at the AMDA Annual Symposium. * The AMDA Foundation/Pfizer Quality Improvement Awards supports innovative projects in the areas of education, quality improvement, and research that will make a distinct impact on the quality of long term care.

For additional information, please contact: Lorraine Tarnove
Email: amdafoundation@amda.com
Phone: (410) 992-3134

For additional information, please contact: Susan Miller

NPCRC is a national initiative committed to stimulating, developing, and funding palliative care research directed at improving care for patients with serious illness and their families.

For additional information, please contact: Catherine Maroney-Galin
Email: catherine.maroney@mssm.edu
Phone: 212.241.5388

Our mission is to help you and your family plan and receive the care you deserve.

Something is terribly wrong: The majority of Americans want to die at home surrounded by family and friends, but most end up dying in the hospital or nursing home, cared for by strangers. Half of Americans die in pain that could have been treated. Sick people have come to fear losing their dignity or burdening their families more than they fear death. And this is all happening in a country that is meant to prize the rights of individuals and champion respect for personal wishes.
The non-profit Aging With Dignity was established because you and your family deserve better. We provide you with the practical information, advice and legal tools you need to ensure your wishes and those of your loved ones will be respected. By helping you improve your own quality of care, we can bring about dramatic change, one person at a time.

The Five Wishes document helps you express how you want to be treated if you are seriously ill and unable to speak for yourself. It is unique among all other living will and health agent forms because it looks to all of a person's needs: medical, personal, emotional and spiritual. Five Wishes also encourages discussing your wishes with your family and physician.

For additional information, please contact:
Email: fivewishes@agingwithdignity.org
Phone: 888-5-WISHES (594-7437)

CancerResources is an on-line guide to cancer-related information, services and organizations. This is an insider's guide developed by survivors, caregivers, professionals and volunteers who have all had our lives touched by cancer.

The company produces and distributes Health Journeys and other guided imagery and meditation tapes, CDs, books and software – in other words, holistic health tools that teach healing and wellness practices.

Site combines elements of medicine, psychiatry, poetry, prose and images to provide resources and support to those who have experienced loss, be it acute or long- standing.

The Resource Group, the largest community based HIV/AIDS agency in the state of Texas, was founded as a 501(c)(3) non-profit agency to serve as the community based administrative agency for collaborative HIV/AIDS services funding in Houston.

The Leukemia & Lymphoma Society is a voluntary health organization dedicated to funding blood cancer research, education and patient services.

U.S. Living Will Registry
The U.S. Living Will Registry electronically stores advance directives and makes them available to health care providers 24 hours/day via secure Internet or telephone-facsimile. The Registry stores ALL types of advance directives...living wills, health care proxies, health care power of attorney, as well as organ donor information.

U.S. Living Will Registry
523 Westfield Ave., P.O. Box 2789
Westfield, NJ 07091-2789
Phone: 800-LIV-WILL (800-548-9455) Fax: 908-654-1919

For additional information, please contact:
Email: admin@uslivingwillregistry.com
Phone: 800-LIV-WILL (800-548-9455)

The Medicare Rights Center (MRC) is a national, not-for-profit, non-governmental organization that helps ensure that older adults and people with disabilities get good affordable health care.

Goal is to provide information, education and support to families caring for aging loved ones, especially those coping with Alzheimer's Disease and related dementias.

The mission of CancerSource.com is to provide comprehensive, accurate, and personalized source of cancer information and services available.

The Eldercare Locator is a free public service that connects older people and their families to valuable information on services and resources for senior citizens anywhere in the nation. The Eldercare Locator is a public service of the U.S. Administration on Aging administered by the National Association of Area Agencies on Aging.

The American Brain Tumor Association exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families.

Cancer Pain Release is the publication of the World Health Organization global communications program to improve cancer and HIV pain control and palliative care. Cancer Pain Release is dedicated to keeping a worldwide and multi-disciplinary audience in the health professions and government abreast of relevant information and developments in clinical medicine, education and policy.

AAHPM is an organization of physicians and other medical professionals dedicated to excellence in palliative medicine, the prevention and relief of suffering among patients and families by providing education and clinical practice standards, fostering research, facilitating personal and professional development of its members, and by public policy advocacy.

The American Academy of Hospice and Palliative Medicine (AAHPM) is proud to announce the availability of PC-FACS (Fast Article Critical Summaries for Clinicians in Palliative Care), a new electronic publication for all clinicians interested in end-of-life care.

The American Hospice Foundation provides training and education programs in the workplace, in public and private schools, and in the health care system, with the goal of improving services for grieving and dying Americans of all ages.

A National Program of the Robert Wood Johnson Foundation, Faith in Action seeks to combine the resources of local faith community and community organizations, such as hospices, to serve their neighbors. Sponsored by the Robert Wood Johnson Foundation, Faith in Action offers start-up grants of $35,000 to help communities organize new caregiver coalitions. Hospices are eligible to apply. In addition to grant funding, Faith in Action supports emerging coalitions with technical assistance for coalition building, board development, volunteer recruitment and training, communications, fundraising, strategic planning and program management.

Welcome to the home page of Hospice Foundation of America. Whether you are looking for general information about hospice, or specific information on the Foundation, we hope you'll find our page informative, interesting and helpful.

The purpose of the HNPA is to exchange information, experiences, and ideas; to promote understanding of the specialties of hospice and palliative nursing; and to study and promote hospice and palliative nursing research

For health care professionals aiming to improve palliative care in their institutional settings, Innovations is an online peer-reviewed journal which also has a standing print presence in the Journal of Palliative Medicine. Funded by Last Acts and the Robert Wood Johnson Foundation, Innovation's primary goal is to disseminate best practices and support institutional change by a careful examination of the process of implementing successful programs and by offering international and cross-cultural perspectives in each thematic issue.

Presents healthcare providers with a care coordination model for improving end-of-life care and offers patients and their loved ones guidance and support for dealing with advanced illness and death.

In 1983, Children's Hospice International (CHI) was founded as a non-profit organization to provide a network of support and care for children with life-threatening conditions and their families.

The National Coalition for Cancer Survivorship (NCCS) is a grassroots network of individuals and organizations working on behalf of people with all types of cancer.

The mission of The Dougy Center is to provide to families in Portland, Oregon and the surrounding region loving support in a safe place where children, teens, and their families who are grieving a death can share their experience as they move through their healing process. Through our National Center for Grieving Children and Families, we also provide support and training locally, nationally and internationally to individuals and organizations seeking to assist children and teens in grief.

Volunteers of America, one of the nation's oldest, largest, and most comprehensive nonprofit human service organizations, helps over one million Americans every year.

NFCA is a grass roots organization created to educate, support, and empower the millions of Americans who care for chronically ill, aged or disabled loved ones. NFCA reaches across the boundaries of different diagnoses, different relationships and different life stages to address the needs and concerns of all family caregivers.

For additional information, please contact:
Email: info@nfcacares.org
Phone: 800/896-3650

Welcome to the CMS, the federal agency that administers the Medicare, Medicaid and Child Health Programs.

The Food and Drug Administration's home page.

GovBenefits is a government Web site managed by the U.S Department of Labor, in partnership with nine other federal agencies. The site provides information about available government benefits they may be eligible to receive.

U.S. Government Printing Office. Access to various documents for sale through the GPO

The U.S. Department of Health and Human Services home page.

MEDLINEplus is the free consumer health information resource from the National Library of Medicine, National Institutes of Health. It has been consistently rated number one or in the top three consumer health web sites in independent studies. Health professionals and consumers alike can depend on it for information that is authoritative and up to date. MEDLINEplus has extensive information from the National Institutes of Health and other trusted sources on over 500 diseases and conditions. There are also lists of hospitals and physicians, a medical encyclopedia and dictionaries, health information in Spanish, extensive information on prescription and nonprescription drugs, current health news, and links to thousands of clinical trials.

Access to NIH information including National Library of Medicine resources.

Information on Medicare and other SSA benefits.

The Whitehouse home page. Access various information from the administration, Cabinet home pages, etc.

Access to Congressional legislation including full text search of bills.

Access to representatives home pages and congressional documents.

The National Library of Medicine - The world's largest biomedical library providing access to MEDLINE, other databases & Internet services, historical materials, research programs, training, special exhibits, and grants.

The End of Life Special Interest Group is sponsored by The National Institutes of Health , US Department of Health and Human Services (DHHS). We provide a means for all DHHS Agencies interested in end-of-life research to coordinate planning activities and to provide a means for communicating these DHHS activities to the broader community.

The VA Palliative Care Network (PCN): Our primary mission is to create and foster a communication network for VA providers involved in hospice and palliative care. This VA Palliative Care Network consists of two major parts, a palliative care portal and an electronic bimonthly newsletter which in turn is linked to this palliative care portal The Palliative Care Network (PCN) is supported by the Offices of Geriatrics and Extended Care (GEC) and Academic Affiliations (OAA).

For additional information, please contact:
Email: hospice@med.va.gov

Cancer Family Care provides counseling and understanding to cancer patients and their families to help them cope with the devastating emotional impact of disease and loss serving the residents of Greater Cincinnati and Northern Kentucky.

Our mission at Death and Dying is to provide you with comfort, support, and education about issues surrounding death at times of apprehension, confusion, and sorrow as well as at times of understanding, growth, and serenity.

A non-profit organization working with grief, bereavement, hospice, and end-of-life issues.

The HealthCare Chaplaincy is a multifaith community of professionals committed to the advancement of pastoral care, education and research.

We are dedicated to the spiritual care of all persons who are suffering in body, mind and spirit.

Run to Remember provides an opportunity for you to support hospice care and at the same time honor the memory of a loved one. Through the process of training for a marathon or mini-marathon, Run to Remember will help you to train appropriately, create a legacy in honor of your loved one, and provide step by step assistance in raising funds for The National Hospice Foundation.

For additional information, please contact: Stuart Lazarus
Email: stuart@runtoremember.org

Hospice House 34-44 Britannia St London, WC1X 9JG UNITED KINGDOM

Help the Hospices is the national charity for the hospice movement, founded by the Duchess of Norfolk. They support hospices in their vital work on the frontline of caring for people who face the end of life and caring for those who love them. We have a search feature for hospices in Europe.

Click here to search for an international hospice.

For additional information, please contact: David Praill
Phone: 44 (0) 20 7520 8200

1515 Holcombe Blvd, Box 112 C/O MD Anderson Cancer Center Houston, TX 77030-4009

Our mission is to increase the availability and access to high quality hospice and palliative care for patients and families throughout the world. We do this by promoting communication, facilitating and providing education, and by becoming an information resource for patients, professionals, health care providers and policy makers around the world.

Our vision is to help alleviate the physical and psychosocial suffering associated with progressive, incurable illness throughout the world. IAHPC is a not for profit organization. Where applicable, donations to IAHPC from individuals, companies or sponsors are tax deductible.

We have an international directory on our web site.

For additional information, please contact: Liliana DeLima
Phone: (713) 339-9041

51-59 Lawrie Park Rd Sydenham London, SE26 6DZ UNITED KINGDOM

The hospice has 62 beds and provides Home Care, Extended Home Nursing Service, Day Hospice / Centre, a Bereavement Service plus support for other life threatening illnesses.

For additional information, please contact:
Phone: 011-44-208-778-9252

A team of social scientists and clinicians based at Lancaster University (UK) collaborates with colleagues all around the world in an effort to provide research evidence to impact the global development of hospice and palliative care. The Observatory encourages interested parties to get involved with us – through research collaboration, programmes of study, volunteering or grant support.

For additional information, please contact: David Clark
Email: d.clark@lancaster.ac.uk
Phone: +44 1524 592513

The American Health Quality Association represents Quality Improvement organizations (QIOs) and professionals working to improve the quality of health care in communities across America.

The American Alliance of Cancer Pain Initiatives is dedicated to promoting cancer pain relief nationwide by supporting the efforts of State Cancer Pain Initiatives. Cancer Pain Initiatives are voluntary, grassroots organizations composed of nurses, physicians, pharmacists, social workers, psychologists, and representatives of clergy, higher education, and government. Initiatives and their participants provide education and advocacy to healthcare providers, cancer patients and their families.

Gift From WIthin is also listed on the Deployment Health Clinical Center website and other websites for those either suffering from trauma and caregiving.

Gift From Within, an international nonprofit organization is dedicated to those who suffer post-traumatic stress disorder (PTSD), those at risk for PTSD, and those who care for traumatized individuals. Educational materials include videotapes, books and articles for both clinicians and those experiencing PTSD. Gift From Within was founded by Frank Ochberg, M.D., an expert in PTSD. Dr. Ochberg is the former Associate Director of the National Institute of Mental Health and one of the team members who wrote the medical definition for Post Traumatic Stress Disorder. He was the editor of the first treatment text in America for PTSD.

The Gateway to PTSD Information (www.ptsdinfo.org) is a gateway to four nonprofit sites that offer PTSD information and resources. Four national and international organizations are here to help, with articles, references, web-links, mini-courses, 800 phone access and e-mail pen-pal resources. This site is listed on the U.S. Department of Health and Human Services website, under their mental health disorders topic.

Gift From Within- PTSD Resources for Survivors and Caregivers l6 Cobb Hill Road Camden, ME 04843 USA 207 236-8858 ph 207 236-2818 fax

For additional information, please contact: Joyce Boaz
Email: joyceb3955@aol.com
Phone: 207-236-8858

AGR's donor program and no-cost cremation service has been an extremely valuable resource for Social Workers, Chaplains, Hospice Staff and the grieving families they serve. National, 24 hour hotline. Families get closure within weeks, not years! Thank you.

For additional information, please contact: Dawn E. Ross
Email: dawn.agr.donorserv@verizon.net
Phone: 800-300-5433