Breaking News:  “Standards of Practice for Pediatric Palliative Care and Hospice” released by NHPCO NHPCO has released its first set of standards for pediatric palliative care and hospice. Developed by NHPCO and ChiPPS to address the needs of young people and families facing serious and life-limiting sickness  Learn more about the “Standards of Practice for Pediatric Palliative Care and Hospice” NHPCO Members:  Download the Pediatric Standards in PDF. Order the Standards of Practice for Pediatric Palliative Care and Hospice from the NHPCO Marketplace online or call 1-800-646-6460.

The Children's Project on Palliative/Hospice Services (ChiPPS) is working to concretely enhance the science and practice of pediatric hospice and palliative care, and to increase the availability of state of the art services to families. Several leaders in the field of pediatric palliative care worked collaboratively with NHPCO to develop the Children's Project on Palliative/Hospice Services. The project seeks to make the best-known practices in the field of pediatric palliative care more widely available to care providers. History of ChiPPS

ChiPPS Resources:

• ChiPPS Pediatric Palliative Care Newsletter
  • Current issue:   May 2009 - Families Experiencing Transitions
  • Archive ChiPPS Newsletters - and information on subscribing
• Educational Opportunities
• Facts and Figures on Pediatric Palliative Care and Hospice (April 2009)
• Resource lists:
  • Children's Books on Death-related Issues  
  • Resource List for Families 
  • Resource List for Professionals  
• Articles and White Papers
  • A Call for Change: Recommendations to Improve the Care of Children Living with Life-Threatening Illnesses (PDF)
    • Key Recommendations (PDF) 
  • Finding Our Way:  Living with Dying in America:  When a child is dying, a Knight Ridder/Tribune article. (PDF)
  • Ethics and Decision-Making Subgroup Bibliography
    • Summary
    • Bibliography A-J
    • Bibliography K-S
    • Bibliography T-Z
• Education
  • Children's Neuroblastoma Cancer Foundation -- This website contains more than 28 pages of resources for families in many domains.
  • Parents Speak Out on End-of-Life Decisions for a Child (MedPage Today, 09/08/06)
• NHPCO    Marketplace - purchase books and technical materials for or about pediatrics/children
  • Supportive Resources for Pediatric Palliative Care from NHPCO’s Marketplace
  • Compendium of Pediatric Palliative Care
  • Education and Training Curriculum for Pediatric Palliative Care
  • NHPCO's Virtual Audio Conference CD "Updates in Pediatric Pain Control."
  • Search for books by typing:  "For children," "Childhood," or "Pediatrics" in the search area.
• Caring Connections - NHPCO’s consumer engagement program offers resources on planning ahead, caregiving, living with an illness and grieving a loss.  The Web site also contains educational brochures and information in English and Spanish language for parents of seriously ill children (see “Resources”).
• Partnership for Parents - Online support for parents caring for children diagnosed with a serious illness, developed by the Children’s Hospice and Palliative Care Coalition.  Information available in English and Spanish. 

Join NHPCO’s Pediatric Listserve!  NHPCO and ChiPPS have launched a pediatric listserve for NCHPP or eNCHPP members who provide services for children with life-threatening conditions and their families.   Read more about the listserve and eligibility requirements to participate.  Join the Pediatric Listserve

Partnering for Children is a national awareness campaign to help get the word out about compassionate, family-centered healthcare for children with life-threatening conditions. For more information on the Partnering for Children campaign, including how to join as a campaign partner, please visit www.partneringforchildren.org.

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