Text Size

  • Increase
  • Decrease
  • Normal

Current Size: 100%

Pediatric Hospice and Palliative Care

Children’s Project on Palliative/Hospice Services (ChiPPS), NHPCO’s pediatric leadership council, has been committed to making the best-known practices in pediatric palliative and hospice care more widely available to care providers and increasing the availability of state-of-the-art services to families since 1998. ChiPPS’ mission is to build capacity by identifying, developing and disseminating practical strategies that advance care for children and families coping with life-threatening conditions, dying and bereavement.

Donate online to support pediatric hospice and palliative care.

Communications

Education

Outreach

  • Caring Connections - NHPCO’s consumer engagement program offers resources on planning ahead, caregiving, living with an illness and grieving a loss. The website also contains educational brochures and information in English and Spanish language for parents of seriously ill children (see “Resources”).
  • Partnering for Children: Pediatric Outreach Guide - a national awareness campaign to help get the word out about compassionate, family-centered healthcare for children with life-threatening conditions.

Policy

  • Pediatric Concurrent Care - Continuum Briefing (January 2013) -  The Mary J. Labyak Institute for Innovation at the National Center for Care at the End of Life is please to offer a pediatric-focused Continuum Briefing which provides:
    • Definition of pediatric palliative and/or hospice care;
    • An overview of Concurrent Care for Children provision in the Affordable Care Act (ACA);
    • Identification of the barriers for pediatric palliative care that are not addressed even with the provision for concurrent care in ACA;
    • Key strategic opportunities for hospice and palliative care providers to expand the care continuum for children living with life-limiting or life-threatening conditions and their families.
  • Concurrent Care for Children Requirement: Implementation Toolkit  (Section 2302 of the Patient Protection and Affordable Care Act)
  • Questions and Answers on Concurrent Care for Children from CMS

Quality

Resources from NHPCO’s Marketplace

  • Visit Marketplace - Search for books and technical materials for or about pediatrics/children by typing: "For children," "Childhood," or "Pediatrics" in the search area.

Questions: Email pediatrics@nhpco.org
 

Having trouble viewing PDF documents?  These documents can be viewed by using Adobe Acrobat Reader. To download a free copy, click on the icon below: