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Additional Resources

Additional Research Links – Included below are links for national hospice statistics. For state level information, please contact your state hospice organization.

  • Access to Growth House Mega Search Engine – Growth House, Inc., provides this portal as an international gateway to resources for life-threatening illness and end of life care.
  • Center to Advance Palliative Care  – The Center to Advance Palliative Care (CAPC) provides health care professionals with the tools, training and technical assistance necessary to start and sustain successful palliative care programs in hospitals and other health care settings.
  • Centers for Medicare and Medicaid Services – The Centers for Medicare and Medicaid Services is the US federal agency that administers Medicare, Medicaid, and the State Children's Health Insurance Program. This link takes you directly to the Hospice Center page of the CMS Web site.
  • Dartmouth ATLAS – The Dartmouth Atlas Project works to accurately describe how medical resources are distributed and used in the United States. The project offers information and analysis regarding national, regional, and local markets, as well as individual hospitals and their affiliated physicians, in order to provide a basis for improving health and health systems.
  • Facts on Dying – The Brown University Center for Gerontology and Health Care Research, with funding from the Robert Wood Johnson Foundation, is engaged in a research effort to use both existing and new data collections to describe the dying experience in the United States of America utilizing maps which display geographical data about quality of end-of-life care.
  • LitLinks – A collection of scholarly literature from The Portal of Geriatrics Online Education, a source for geriatric and gerontology-related teaching and assessment materials. POGOe is managed by the Icahn School of Medicine at Mount Sinai on behalf of the Association of Directors of Geriatric Academic Programs.
  • National Center for Health Statistics – The National Center for Health Statistics is a US agency that compiles statistical information to guide actions and policies to improve the health of the United States.
  • NIH Interactive Textbook of Symptom Research – The Symptom Research interactive clinical research textbook contains over 20 chapters on different aspects of clinical pain and symptom research.
  • PubMed – PubMed is a service of the US National Library of Medicine that includes over 17 million citations from MEDLINE and other life science journals for biomedical articles back to the 1950s. It includes links to full text articles and other related resources.
  • Shaare Zedek Cancer Pain and Palliative Medicine Reference Database – This is a searchable database of over 30,000 references related to Cancer Pain and Palliative Care.
  • NHPCO InfoCenter  – A searchable database journal articles, Web sites, books, conference papers and sessions, organizations, program assessment and improvement tools.

Any questions about research may be submitted via email at research@nhpco.org