Text Size

  • Increase
  • Decrease
  • Normal

Current Size: 100%

Pediatric Concurrent Care

For Immediate Release: April 15, 2011

Concurrent Care for Children: Implementation Toolkit Released by NHPCO and DCPPCC

(Alexandria, Va) – It has been just over a year since President Obama signed the Patient Protection and Affordable Care Act into law which enacted a new provision known as the “Concurrent Care for Children Requirement” (CCCR). A new publication to help with the implementation of CCCR, the Concurrent Care for Children: Implementation Toolkit, has been created by the National Hospice and Palliative Care Organization and the District of Columbia Pediatric Palliative Care Collaboration.

The CCCR provision (Section 2302 of the ACA) states that children under the age of 21 who have been diagnosed with a life-limiting illness—and are eligible for Medicaid or the Children’s Health Insurance Program—may receive all services that are related to the treatment of a child’s life-limiting illness.  This would allow these young people to have palliative and hospice care services while they are receiving other disease-modifying treatments. “The CCCR provision is a vital piece of legislation that the pediatric hospice and palliative care community has been championing for years.

The Toolkit is a comprehensive resource to guide providers, legislators and families to implement the provision as well as to strategize options for all children with serious illness, and represents a tremendous step forward for children with life-threatening conditions,” said Sarah Friebert, MD, Director of the Haslinger Division of Pediatric Palliative Care at Akron Children's Hospital.

Concurrent Care for Children: Implementation Toolkit provides information on the options available to states that are implementing Section 2302 or are considering expansion of pediatric palliative care services to children. Inspired by the vision of the late Dr. Carlos Gomez, one of the founders of the District of Columbia Pediatric Palliative Care Collaboration, the Concurrent Care for Children: Implementation Toolkit is available online as a free resource on the NHPCO website. NHPCO gratefully acknowledges the District of Columbia Pediatric Palliative Care Collaboration for their generous funding to make this valuable resource available to the entire pediatric palliative care field. NHPCO’s Children’s Project on Palliative/Hospice Services (ChiPPS), a pediatric leadership council created in 1998, has been committed to making the best-known practices in pediatric palliative and hospice care more widely available to care providers and increasing the availability of state-of-the-art services to families.

To learn more about pediatric palliative and hospice care or to download the Toolkit, please visit www.nhpco.org/pediatrics.


Jon Radulovic

NHPCO, Vice President of Communications