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NHPCO’s Standards for Pediatric Care

Advancing Care for America’s Children

Despite amazing progress in medicine and technology, the unfortunate reality remains that children die. Approximately 53,000 children die each year in the United States and at least 400,000 more live every day with chronic, life-threatening conditions. While these numbers pale in comparison to the number of dying adults, the impact on families and on society is immeasurable. NHPCO in conjunction with the Children’s Project on Palliative/Hospice Services developed its first national pediatric standards in 2007. This useful publication, the Standards of Practice for Pediatric Hospice and Palliative Care Programs, was revised and re-released in November 2018.

NHPCO members may download the Pediatric Standards free-of-charge.  Non-members may order a downloadable PDF from the NHPCO Marketplace by calling 1-800-646-6460.

Standards of Practice for Pediatric Palliative Care

Implementing the Standards

The Pediatric Standards are a supplement to the NHPCO Standards of Practice for Hospice Programs and are designed to supplement the existing Standards and set clinical and organizational precedence for hospice and palliative care programs providing care to infants, children, adolescents, and their families in the home, hospital, and long-term care and respite facilities.

Pediatric Facts & Figures

To understand the importance of pediatric palliative and hospice care, NHPCO and ChiPPS released a document with facts and figures on pediatric end-of-life care. Download “Facts & Figures on Pediatric Palliative Care and Hospice.” (PDF)

Additional Resources:

The following resources are available for purchase from NHPCO’s Marketplace at member-discounted rates:  

Family Education Brochures (available in English and Spanish):

  • When Your Child is in Pain
  • Talking with Your Child about His/Her Illness
  • Talking with Your Child’s Doctor
  • When a Child Dies: A Guide for Family and Friends
  • Helping Children Cope with Death