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Patient and Family-Centered Care

Providing care and services that are responsive to the needs and exceed the expectations of those we serve.

Framework Patient and family-centered care is an approach to the planning, delivery and evaluation of health care that is grounded in mutually beneficial partnerships among patients, families, and health care practitioners.  It is founded on the understanding that the family plays a vital role in ensuring the health and well-being of patients.

The ultimate goal of patient and family-centered care is to create partnerships among health care practitioners, patients and families that will lead to the best outcomes and enhance the quality and safety of health care.

Self-Assessment NHPCO has produced a self-assessment checklist for hospices to review their organization’s leadership, mission and vision, resources, and services in respect to patient and family-centered care.

Members can view the Self-Assessment Checklist for Patient and Family-Centered Care.

Pathways to Success The following steps operate in conjunction with the self-assessment checklist for patient and family centered care:

  1. Briefly describe innovations, initiatives, or programs in your hospice that reflect patient and family centered care and family-professional collaboration.
  2. List the benefits or outcomes evolving from these innovations.
  3. Briefly describe challenges or difficulties that you or your hospice has experienced in advancing the practice of patient and family centered care.
  4. Reflect on the findings from the self-assessment and their relevance and importance to your organization’s strategic priorities and quality and safety agendas.

National Standards and Preferred Practices

Members can view the chapter on Patient and Family Centered Care

Resources and Tools

Members can view the following in Resources and Tools for Patient and Family Centered Care

Essential Materials  Find key resources that reflect upon: availability of services, coordination of care, care planning, and bereavement.

Web Links  Find information on other institutions, organizations, resources that focus on patient and family centered care

Quality Partners@ InfoCenter Quality Partners @ InfoCenter offers members access to an online database with over 400 records of resources related to the ten components. Members can either search through the database or click on provided links that will conveniently display a listing of resources under the following headings:  Essential Materials, Background Materials, Performance Measures, NHPCO Resources, and Resources Categorized by NHPCO Standards.

Background Materials

The following resources focus on the quality initiative and/or patient and family-centered care. Visit Quality Partners @ InfoCenter to find these and other resources.

  1. Rumbold, Bruce D. Caring for the Spirit: Lessons from Working with the Dying. (MJA 2003; 179: S11-S13)
  2. The Institute of Medicine. Crossing the Quality chasm:A new Health System for the 21st Century. Washington, D.C.: National Academy Press, c2001.
  3. Kingson, Eric R. Lessons from Joan: living and loving with cancer, a husband’s story. Syracuse, N.Y.: SyracuseUniversity Press, 2005.

Help Desk

If after reviewing the online resources you need additional assistance, contact quality@nhpco.org or the Quality Team at 703/837-1500.

Marketplace Availability

The following technical materials support the many aspects of Patient and Family-Centered Care.