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ALS Supplemental Resources

ALS Resources

Facts and Figures

NHPCO’s Statistics and Trends: Findings based on NHPCO’s National Data Set, an annual online survey of hospice and palliative care providers.

View a sample page of the report, comparing ALS to other diagnosis statistics.  Complete National Data Set reports are available to NHPCO members only, and may be accessed on the web page listed above.

Web Sites

NHPCO's CaringInfo: A program of the National Hospice and Palliative Care Organization, CaringInfo is a national consumer engagement and education initiative to improve care at the end of life and offers free resources and information on a wide range of issues that include advance care planning, family caregiver, talking with care providers, coping with pain, and much more.

ALS Association (ALSA): The only national not-for-profit health organization dedicated solely to lead the fight against ALS. Its mission is to lead the fight to cure and treat ALS through global, cutting-edge research, and to empower people with Lou Gehrig’s disease and their families to live fuller lives by providing them with compassionate care and support.

Muscular Dystrophy Association (MDA): A national voluntary health agency dedicated to conquering more than 40 neuromuscular diseases that affect a million Americans of all ages.

National Institute of Neurological Disorders and Stroke (NINDS): The mission of NINDS is to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world. View an ALS Fact Sheet.